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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, February 10, 2018


Ubiome has ceased trading

MEBO thanks Ubiome who had the right idea.
(consumer test, the people can be in charge of their health, test would evolve) 
The downfall was the move into the USA health system.


update : 6sep19
UBIOME discount is suspended.
But you can still order explorer test ($89) via the link.

Ubiome has filed for bankruptcy and is restructuring.
You can read about this here : link 4sep19
They feel they will come through this.
So for now we still have a link to the test order.  

*****************       ******************

get MEBO 10% discount
UBIOME 10% Discount.
link : Ubiome gut explorer page

in checkout, use promotion code :
or ... mebo

Discount should apply internationally also.
Purchase should give $8.90 discount.
Cost should be $80.10

note : for Non-USA there are shipping costs.
Receive : Ubiome add ship cost.
Return : Need to arrange yourself, but can use cheapest airmail (e.g. postal service).
No special return service needed (i.e. can be a few days).

On Ubiome Site :
choose ONE TIME PURCHASE ($89)
at CHECKOUT use code MEBO (or mebo)
Price should change to $80.10

News 1/2
MEBO has arranged for a 10% discount for the UBIOME GUT EXPLORER (single purchase) service.
This is a good way of getting an idea of the current state of your gut microbiome.

News 2/2
This means you can send your details to the current study Danny is doing as well if you want, once you get your results.
Link : About Danny's citizen science study

More details to follow ...

choose this kit
Notes :
Does not apply to :
Gut Explorer subscription (not recommended anyhow).
5 site test.

Around January 2018 Ubiome DISABLED much of the data in GUT EXPLORER compared to SMARTGUT, including raw download, but this data now seems to be restored. So both are as good as each other for information yielded.

Irene's Gut Flora Study 
MEBO helper Prof Irene Gabashvili is conducting a study on the Ubiome results in relation to the malodor community.
If you want to send your results to Irene, you can contact her by email :  

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A EURORDIS and NORD Member Organization


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