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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Friday, November 13, 2009

MeBO’s financial update

Since MeBO Research’s inception four months ago on July 12, 2009, it has made every effort to stretch its very limited financial resources to carry out scientific study involving persons who suffer from body odor conditions. In our initial research effort, the MeBO-Biolab Gut Dysbiosis Study, we have already tested two volunteers, and are currently testing the third. In addition, MeBO is initiating a ‘thorough case study’ of another volunteer, as noted in our previous post in this blog, More about the MeBO-Biolab thorough case study in systemic body odor and/or halitosis.

These studies have been carried out under the supervision and advisement of MeBO’s expert, Dr. Irene Gabashvili , who has graciously dedicated her pro-bono services, and continues to generously offer her time to compile and organize MeBO’s test result data to later present its patterns along with her interpretation. We are also grateful to Biolab Medical Unit in London for allowing us to do the study by using their tests, and all their other cooperation.

How has MeBO paid for all this? Where have the funds come from? This study has been supported by Dr. Gabashvili and Biolab's help, sufferers donations both in the US and the UK, and by volunteer testers footing their respective testing costs. Without all of this generosity, MeBO would not have been able to gather data of test results, which has not only been of personal valuable to those tested, but also to the community as this information can potentially be used for future research.


CASH DONATIONS*

July 12 thru

November 12, 2009

VOLUNTEERS FOOTING THEIR TESTING EXPENSES paid directly to Biolab

BIOLAB DISCOUNT

&

MEBO CONTRIBUTIONS (INCLUDED)

£330.00 GBP =

$546.98 USD

610.00 GBP =

1,016.75 USD

Through the first 3 testers paying for their own tests

Biolab Discount

&

£125.00
from MeBO Fund

TOTAL Proceeds: £940.00 = $1,563.73

from July 12 through November 12, 2009


As more test results become available with notable patterns, they will be analyzed, interpreted and presented by Dr. Gabashvili in this blog and in MeBO’s website.

It is MeBO’s next aim to extend this Gut Dysbiosis Study to be carried out in the United States by the first part of 2010, and eventually to other countries, making this an international effort.

María de la Torre



The form to test in MeBO-Biolab Gut Dysbiosis Study is here :
MeBO-Biolab gut dysbiosis in body odor or halitosis study form-REVISED

Donate to MeBO Research

What MeBO is doing

MeBO Research aims to become a charity focusing on systemic body odor and systemic sourced halitosis, particularly 'bowel smells' body door, since it is the most common. Any donations are welcome to primarily reach MeBO's aim of charity status. As a charity, MeBO can then pursue grants and endowments in order to carry out large-scale international studies.

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