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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, November 11, 2009

More about the MeBO-Biolab thorough case study in systemic body odor and/or halitosis

MeBO is currently conducting a small Gut Dysbiosis Study thanks to cooperation with Biolab Medical Unit. This study consists testing volunteers for dysbiosis markers available from Biolab's reportoire of tests. Two volunteers have already done the Gut Dysbiosis Study. One volunteer will undergo a more thorough testing process with Biolab. In additon, an organic acid urine test will be added, which is used mostly in metabolism units. Each volunteer is paying for his or her own tests, for which we are truly grateful.

A volunteer has offered to be the subject of a more 'thorough case study'; and the tests selected are listed below. The tests are restricted to what was on offer from Biolab's list, cost limitations, and other options presently possible. This thorough case study should be regarded as an exploratory screening, with most results expected to come back normal, apart perhaps from dysbiosis markers. This study should be seen as a starting point and not as the final measures of investigating systemic body odor and halitosis. Partly it is to inspire and act as an example as to what the community could achieve.

The case study volunteer wanted to pay for all her tests, but MeBO feels it more appropriate to partly fund her cost, since she is doing the community the favor. So MeBO will be paying £125 of the costs, thanks to donations. Biolab also offered to help in this case by giving a 25% discount on their tests, to which we are grateful.

The tests chosen were :
(from Biolabs list of tests)

D-LACTATE IN SERUM £12 - Lactic acid bacteria produces d-lactic acid. Usually this acid is helpful but not if over-produced. In tester 2 this was elevated,
B VITAMINS PROFILE (B1 B2 B6) £46 : B vitamins are often produced by good bacteria and are co-factors in many enzyme reactions, including B2 for FMO3 enzyme,
GUT FERMENTATION TEST £44 : A blood test that checks for candida production of ethanol, as well as some alcohols associated with unfriendly bacteria and short chain fatty acids associated with friendly bacteria,
GUT PERMEABILITY PROFILE £75 : Checks gut absorption ability at different molecule sizes. Including under absorption and 'leaky gut',
INDICANS £13 :- bi-product of certain protein bacteria fermentation,
GUT FUNCTION PROFILE £77 : Hydrogen and methane breath test, which are associated by-products of small intestine bacterial overgrowth
AMINO ACID PROFILE £82 : Checks various amino acids associated with normal metabolism function,
GLUTATHIONE-S-TRANSFERASE £22 : An enzyme that does a variety of vital things, including being one of the phase 2 biotransformation enzymes, that are often involved in detox processes,
HAIR MINERAL PROFILE - £33 : Minerals are often co-factors in enzyme functions.

Total = £404
-25% discount = £303
- MeBO £125 = £178
+ Organic Acid test (from The London Clinic) =£140
: The organic acid test here is similar to that used in the newborn screening program, primarily looking for major well-known metabolic disorders, but also some of interest to MeBo including one which is an indicator of biotin levels, and others that are short chain fatty acids produced by good bacteria

total volunteer pays = £318

About the volunteer : The volunteer is a lady in the 35-45 age group who has had a halitosis problem for 10 years, which she feels is systemic-sourced. She is negative for the TMAU urine and DNA test (UK tested).

She feels her halitosis varies over the last 10 years progressively getting worse, mostly like gas fecal, rotten eggs, decay, smoke or burning, and sewage. She feels she has other health issues, such as Chronic Fatigue Syndrome (CFS), digestive issues, thrush, chemical and environmental sensitivities, headaches, and generally feels 'unwell'. In her own words, she feels that, "Anxiety, stress and menstruation all definitely make the odour worse and uncontrollable. Certain foods also make me smell instantly. Eggs make me smell like rotten eggs, coffee gives me a barnyard type smell. Chickpeas and legumes make me smell like sewage and spicy food gives me a rotten, acid type odour."

The form to test in MeBO-Biolab Gut Dysbiosis Study is here :
MeBO-Biolab gut dysbiosis in body odor or halitosis study form-REVISED

Donate to MeBO Research
What MeBO is doing

About privacy:
see Donate page

Currently raised:
330.00 GBP = 546.99 USD
About MeBO Research :
MeBO hopes to help in researching systemic body odor and halitosis problems, both by activating small case studies straight away, and by promoting other research by private or public researchers. MeBO will use any donations either to become a charity, or to help pay for such case studies. The philosophy is that the medical system and society are not interested in systemic body odor or halitosis as a medical condition and no research is forthcoming, and also that society and the medical system do not realize it is probably a common problem. Anyone wishing to donate can do so through the PayPal link, or contact Maria by email, to donate by other ways.


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