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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :
https://meboresearch.co.uk/index.php/living-with-tmau-lwtmau-study/

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Wednesday, February 17, 2010

'Microbes and Us' Slide presentation by Dr. Irene Gabashvili for MEBO Nashville Conference 2010



View more presentations from Aurametrix.
IN addition to having a good time doing our trial run of Dr. Irene Gabashvili’s presentation, ‘Microbes and Us’, in Vokle live, chat, real-time e-mail, she has now posted for everyone to see these slides and Q&A transcript of the Live Online Webinar, which took place on February 12, 2010. This transcript is very informative and particularly interesting as it identifies the normal bacterial flora of humans and where bacteria lives in our bodies, explains the types of microbes including intestinal microbiota responsible for IBS-C, IBS-D, IBD, Crohn’s disease, as well conditions that may be linked to microbiota, such as halitosis, hyperhidrosis, multiple chemical sensitivities, food intolerances (IBS, Celiac, TMAU, CFS), and more. Dr. Irene Gabashvili, Founder of Aurametrix, Personal Health Management Systems, presents an in-depth discussion of microbes including Pathogenic Bacteria DatabaseAlphabetical List of Pathogenic Bacteria’, which has one of the most complete database of the species. In this slideshow presentation, there is a section entitled ‘Diet Tidbits’ which addresses the most widely promoted prebiotics that have been suggested to increase the number of bifidobacteria and discusses the benefits of probiotics. This section also touches upon a very restrictive diet promoted as a way of reducing IBS symptoms, Crohn’s disease, Ulcerative Colitis and autism.
The final section includes the answers to the following webinar audience’s questions:

  • Why do people have Bacterial Overgrowth?
  • Do bacterial populations in human body depend on genetics, environment?
  • What kind of bacteria are TMA-producing?
  • I heard that Solobacteria causes halitosis. Is it really so? (includes a list of ‘Halitosis-related bacteria’)
  • What bacteria smell?
  • Is heterogeneity of metabolic body odor sufferers hindering research?
  • The collection of microbes for study must be a problem. Cross-contamination, etc.
  • How do you get them?
  • What is the most effective treatment to eliminate the desired bacteria: food or antibiotics?
  • How often can we take antibiotics without causing harm?
  • How does stress affect bacteria and enzyme deficiencies / pathways?
  • How does stress affect intestinal permeability?
  • Could a probiotic cleanse (sold on the market) help to flush us help to populate good bacteria?
  • For many of us the diet is confusing would it be difficult to customize a diet for us?
  • How long will it take to see diet results?
  • What would be the ideal diet..Are proteins beneficial?
  • Why some IBS patients have no odor while others do?
  • Can FMO3 be genetically engineered into a probiotic?
We would like to thank all the participants who asked these questions and to our Pharmaceutical Scientist and owner of body odor support.com, Arun Nagrath, for participating in our live discussion session. In spite of our technical ‘growing pains’ as we attempted to create this piece, all in all, we have acquired very valuable information from Dr. Gabashvili, to whom we are deeply appreciative for having helped us initiate this test webinar for the MEBO TMAU, Body Odor and Halitosis Webinar Series. We hope to hear much more from her as she has also so graciously volunteered to be the Overseer of MEBO Research’s exploratory study. On behalf of the body odor/TMAU and halitosis community, we thank you, Irene. http://aurametrix.com http://www.linkedin.com/in/igabashvili http://sites.google.com/site/irenegabashvili/ http://www.biology.sjsu.edu/facultystaff/gabashvili.aspx

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