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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, October 5, 2010

TMAU Test with Eliapharma through MEBO Research

tmau testing usa canadaAs noted in our introductory post, International TMAU Testing in Canada : Special Group Rate," this program's primary aim is to systematically provide testing as affordably as possible to all sufferers throughout the world, most of whom currently do not have any testing opportunities whatsoever." By doing so, we can also obtain data from those who voluntarily opt to take a brief survey (not required to do so in order to test) that may be used in future research into body odor conditions. If people from many countries who have different lifestyles and diets participate in this program, we will obtain valuable information about the variations in TMAU sufferers of different cultures, as well as those who test negative for TMAU.

Since Eliapharma is located in Canada and MEBO Research, Inc. is based in Miami, FL, US, we are making the necessary arrangements to test anyone from either of these two countries, while we also focus on working with Customs Agencies of Mexico, Colombia, and Argentina as a starting point. Once this service is up and running, we will then move on to other countries that don't have labs to test for TMAU.

In order to comply with all the shipping laws of the two governments' involved with each shipment, much preparation and documentation must be arranged in advance. Since the kits shipped from Eliapharma in Canada will include two bottles of 4mL hydrochloric acid (HCl), special handling preparations and the proper documentation must be ensured in advance by MEBO in order to comply with each country's requirements. In addition, since the specimens returned to Eliapharma consist of body fluids, even more protocols need to be adhered to in order to comply with each government's laws and guidelines. What seems to be a very simple process is actually a monumental task when crossing international lines.

Nonetheless, MeBO is a proactive patient advocacy group, and no trouble is too much trouble that would deter us from ensuring to the best of our ability that all sufferers from around the world have access to TMAU testing.

We are most grateful to FedEx for offering the complementary services of one of their customer service trainers to show us how to work through the vast sea of codes and international laws and regulations using their very comprehensive program, FedEx Global Trader Manager Demo.

It is MeBO's intentions that most of the documentation be done by MeBO in advance so that the person testing would only have to be concerned with following the enclosed choline/TMA load instructions, collecting the 2 specimens, adding the enclosed HCl to each specimen, freezing them along with the ice packs, and putting them in the original box to ship them back to Eliapharma with the prepaid postage and fully completed international documentation.trimethylaminuria test usa canada

It's as simple as that, VOILÀ!

tmau test usa

We will not turn down anyone wishing to test if it is within our power, so no matter what country you are in, please send an email expressing your interest to tmautest@meboresearch.org with no obligation to participate. PLEASE NOTE WHAT COUNTRY YOU'RE IN ON THE EMAIL. Once we receive the negotiated shipping rate information from FedEx, we will contact you.


Related Posts:

MEBO and Eliapharma TMAU Testing and future research goals

MEBO and Eliapharma TMAU Testing Update 4

INTERNATIONAL TMAU TESTING UPDATE 3

INTERNATIONAL TMAU TESTING UPDATE 2

INTERNATIONAL TMAU TESTING UPDATE

More about TMAU testing through MEBO Research

International TMAU testing in Canada : Special Group Rates

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