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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Sunday, December 18, 2011

Update on the MEBO/Menssana Alveolar Breath Test/Research Study


MEBO/Menssana breath test : would you like to test ?


WHERE WOULD YOU GO
TO BE TESTED?
Please participate in the poll
only if you intend to go
.
This poll is provided to help MEBO Research determine whether there is enough interest in the various locations being considered. We have tentatively selected these destinations, and if you are willing to travel to any of these destinations, please select the location of your choice.

Any recommendation on an inexpensive physical site (preferably at no cost or donated) in any of these cities would be greatly appreciated. If you will be testing in England or Australia, please send me an email telling me which city(s) you would be able to travel to for the test. MEBO and Menssana will also ask each participant/ research subject to answer survey questions to assist Dr. Phillips with his analysis. Once the design of the Requisition and Survey Form is finalized and ready to be published in this blog, more information will follow on how to set up your own personal test in this study.


MEBO Research and Menssana Research
are organizing an alveolar breath research study to explore biomarkers for body odor and halitosis. Please note that although the participants/research subjects will receive their test scores when available, the final interpretation of these scores will not be available until the one-year study has been concluded and Dr. Phillips has finished his analysis and paper. This program is in essence a research study and not a diagnostic test at this stage.

The use of three BCA 5.0 instruments were donated free of charge by Dr. Phillips for a period of one year, while MEBO works at obtaining as many samples as possible worldwide.
MEBO is currently working on the logistics of the administration of this test, which has been progressing as hoped. Since participants/research subjects need to be physically present to perform the test, they would need to go to locations where one of the three (3) BCA 5.0 instruments will be shipped to by MEBO. The use of three BCA 5.0 instruments were donated free of charge by Dr. Phillips for a period of one year, while MEBO works at obtaining as many samples as possible worldwide. This highly sensitive and accurate instrument will be calibrated to perform an analytical process designed and patented by Menssana Research. It will analyze systemic conditions involving 200 odorant compounds, as mentioned in previous posts on the project, MEBO-Menssana Alveolar Breath Test project.


This does not mean that each participant will have to wait one year to receive his or her results, but it does mean that the scientific interpretation of the results from Dr. Phillips will be given at the end of the one-year long study.
Under the monitoring and review of one or more Institutional Review Board (IRB), also known as an Independent Ethics Committee (IEC) or Ethical Review Board (ERB), MEBO Research will collect as many breath samples as funding permits from members of our international community who suffer from body odor and halitosis for a period of one year. These samples will then be shipped to Menssana, and after a year’s compilation of data is analyzed by Dr. Michael Phillips, M.D., he will write a scientific paper with his conclusions of the study, as he and his associates have done in the published studies noted below*, to name a few. This does not mean that each participant will have to wait one year to receive their results, but it does mean that the scientific interpretation of the results from Dr. Phillips will be given at the end of the one-year long study.


We at MEBO Research appreciate the very strong and supportive response we have received from our international community. Thank you.

María

For additional posts on this topic, please click here:
Alveolar Breath Test/Research Study.


*Menssana Research Publications
  1. The IADR/AADR/CADR 83rd General Session (March 9-12, 2005), Prediction of Oral Malodor with Volatile Markers in the Breath.
  2. Oral Diseases (2005); 11 (Suppl. 1): 32-34. Pilot study of a breath test for volatile organic compounds associated with oral malodor: evidence for the role of oxidative stress.
  3. European Respiratory Journal (2004); 24: Suppl. 48, 467s. Volatile markers of pulmonary tuberculosis in the breath.
  4. Workshop on TB and HIV Diagnostics in Adult and Pediatric Populations, sponsored by NIH and FDA, Silver Spring, MD (June 29, 2011)
  5. Journal of Breath Research (Jan.22, 2010)Effect of influenza vaccination on oxidative sgtress products in breath.
  6. Clinica Chimica International (CCA), the International Journal of clinical chemistry and Diagnostic Laboratory Medicine, CCA10989 (May 31, 2008)Detection of lung cancer using weighted digital analysis of breath biomarkers.
  7. Journal of Clinical Oncology 2005; 23(16S): 839 S. Floor presentation at 2005 ASCO Annual Meeting, Orlando, Florida, May 16, 2005, Prediction of Lung Cancer Using Volatile Biomarkers in Breath.
  8. IOPScience, (Mar. 2, 2010). The Institute of Physics (IOP) is a not-for-profit society that provides publications through which leading-edge scientific research is distributed worldwide. Volatile biomarkers in the breath of women with breast cancer.

halitosis research
María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
The MEBO Forum Please sign the MEBO Petition

body odor petition
MEBO Research

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