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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, December 17, 2011

Karen gets the Royal College of General Practitioners to take note of TMAU

Karen James has been boldly leading a one-woman campaign to raise awareness of systemic body odors and halitosis, especially among the medical professional community. Karen is the lady who eloquently told about her TMAU on the popular British mid-morning TV show that is shown here on youtube.

Karen has continued the campaign to raise awareness and looks to have made an inroad with the British medical system. It now seems possible that GP's in the UK may be taught about trimethylaminuria, if the curriculum board decides to add it to their training program.

Also there is the possibility of an article about TMAU and systemic body odors/halitosis in the main medical journal for GP's in the UK : The British Medical Journal.

You can read more about Karen's reply from the Royal College of General Practitioners Curriculum Development Group below (posted with her permission)

Karen was informed that her email had been forwarded to the editor of InnovAiT, the journal for GP trainees, to suggest that they might include something about TMAU in a future issue.

They also suggested she might like to offer her story to publications such as the BMJ (which has a ‘Patient’s Views’ section) and British Journal of General Practice to raise awareness of this rare condition.


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