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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Saturday, December 17, 2011

Karen gets the Royal College of General Practitioners to take note of TMAU

Karen James has been boldly leading a one-woman campaign to raise awareness of systemic body odors and halitosis, especially among the medical professional community. Karen is the lady who eloquently told about her TMAU on the popular British mid-morning TV show that is shown here on youtube.

Karen has continued the campaign to raise awareness and looks to have made an inroad with the British medical system. It now seems possible that GP's in the UK may be taught about trimethylaminuria, if the curriculum board decides to add it to their training program.

Also there is the possibility of an article about TMAU and systemic body odors/halitosis in the main medical journal for GP's in the UK : The British Medical Journal.

You can read more about Karen's reply from the Royal College of General Practitioners Curriculum Development Group below (posted with her permission)

Karen was informed that her email had been forwarded to the editor of InnovAiT, the journal for GP trainees, to suggest that they might include something about TMAU in a future issue.

They also suggested she might like to offer her story to publications such as the BMJ (which has a ‘Patient’s Views’ section) and British Journal of General Practice to raise awareness of this rare condition.

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