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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Sunday, May 6, 2012

Public release of Dr. Irene Gabashvili's Aurametrix



MEBO Research would like to congratulate our Scientific Director, Dr. Irene Gabashvili for her public release of her Aurametrix software solution.(Click and scroll down to see all posts on Aurametrix) The original version of the press release was published in the San Francisco Chronicle, as well as in other newspapers and Forbes magazine.

Below are 30 second videos showing the simplest uses of Aurametrix that give sufferers access to very valuable information that could potentially empower us to control symptoms:

How to count choline:
http://youtu.be/-U4_joPzS5Q




How to count sulfur:
http://youtu.be/9zuMDY9e7gY








What if an invisible digital nurse or a doctor-in-the-pocket could take detailed notes about your physiology, psychology, symptoms and activities, and record the precise ingredients in your foods? And what if this digital nurse also could simultaneously collect information about your environment, including the weather, air quality, allergens and even disease outbreaks near your location?
Irene Gabashvili


Aurametrix is a tool that can help sufferers understand their personal interrelationship with their diet, medication, daily activities, and body odor and/or halitosis conditions, as well as in their mood and feeling of well-being.

We also thank those volunteers who have participated in Irene’s development of this very valuable tool, and are very proud of Irene’s accomplishment with this project, but most importantly, in her selfless giving of her time and knowledge to assist sufferers in their quest for a better life.

Congratulations Irene!
María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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A EURORDIS and NORD Member Organization

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