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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov
MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

TMAU Movie


THE BOY WHO
SMELLS LIKE FISH

Movie also called,
TREADING WATER
See trailer'
Winner of Golden Trailer Award 2013

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Sunday, April 14, 2013

Cheryl Fields is back with us!


Today, our MEBO Community Outreach Director, Cheryl Fields (Dr. Stillstanding), wrote a comment on one of MEBO’s Post, “MEBO Research is now a registered USA Public Charity,” in which she tells us the following:

(262)-764-0737

cherylfieldskenosha@yahoo.com


Hello everyone.

This is Cheryl Fields, I am living in Wisconsin now. I am working lots of hours and I am not available as much online or via the telephone. I just got back online since September 2012! I was so busy, I didn't have time to purchase a computer! Gosh!

Since April 5th, 2013, I am online again. You all can e-mail me at, cherylfieldskenosha@yahoo.com or call me (262)-764-0737, and leave a voice mail message, please repeat your number twice and state TMAU, so I will know what the call is regarding.

Keep your head up!

Remember it is NOT what happens to you, it is how you respond to it!

Very Sincerely,


Cheryl Fields, MBA, Ph.D. (ABD)

Welcome back, Cheryl! How wonderful it is to have you back with us again! For those newer visitors to the blog, Cheryl has been a very active member of our community, even before MEBO’s existence. Her contribution to MEBO as a US Community Outreach Director has been very much appreciated. Click on the link below where we showcase the fine work done by our Community Outreach and Public Relations Directors both in the US & UK.

Click on icon for U.S.

Glad to see that you’re going to be around now, Cheryl, online and receiving phone calls!

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization

posted by Maria de la Torre on 4/14/2013
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