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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, November 1, 2023

The Promise of E.esperance

We invite you to be part of the excitement, whether virtually or in person, at the ongoing iGEM competition in Paris. The spotlight is on the FSU team as they prepare to unveil their latest creation, the probiotic E.esperance, on November 2, 2023.

Now in its 20th year, the iGEM competition has become a cornerstone for a global community of synthetic biology enthusiasts. This extraordinary event draws together a diverse group of participants, including students, researchers, industry leaders, investors, startups, and policymakers, all united by their passion for synthetic biology.

iGEM, or the International Genetically Engineered Machine competition, serves as a dynamic platform for student teams to conceptualize and construct innovative biological systems using standardized genetic components known as BioBricks. Each BioBrick carries a unique identifier, such as BBa_K468006, and can be easily accessed through the iGEM Registry of Standard Biological Parts, offering a valuable resource for information.

E.esperance, the brainchild of the FSU team, is brought to life through a combination of BioBricks, including BBa_K468006 Roseovarius sp 217 TMM Generator, BBa_K468004 R. pomeroyi TMM Generator, and BBa_K4680008 Human FMO3 Generator. These parts come together to form a probiotic that could be a game-changer in addressing TMAU and making a profound impact on well-being of MEBO and PATM communities.


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A EURORDIS and NORD Member Organization


Anonymous said...

It’s great to see that you guys are still working hard for us, I don’t have TMAU but I have something similar.

Nov 2, 2023, 6:29:00 PM
Anonymous said...

Will this be updated with proof of concept? I am so grateful for each of these students choosing TMAU to find a treatment for. I pray they are successful and will post their findings soon.

Nov 3, 2023, 2:59:00 PM
Anonymous said...

How is one able to get in contact with whomever is running this site? I would like to be able to voluntarily contribute in some fashion.

Nov 8, 2023, 4:33:00 PM
Anonymous said...

Does anyone know how long it will be before they get this product on the market? I saw another TMAU blog that says it will be 1 to 2 years but I don’t see that on the igem

Nov 25, 2023, 9:12:00 AM
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