After so many years of selflessly educating and supporting our MEBO community, without receiving any compensation for her work, we are most proud to announce that the UK Medical Research Council (MRC) has granted a research Award of £358,000 GBP (equivalent to 422K/Euros or 552K/USD) to our esteemed and beloved Scientific Advisor, Dr. Elizabeth Shephard.
Details of the UK Medical Research Council funded "Therapy for the body and Breath malodour disorder Trimethylaminuria (TMAU)" has been posted in the Research Councils Gateway To Research Site. You can also access this award information by going to the RCUK Gateway to Research site, and typing in the award code, MR/K015494/1. Please feel free to read all about it, including the Abstract, Technical Summary, and Planned Impact of this research as registered with the Medical Research Council, UK.
Elizabeth Shephard, PhD
Professor of Molecular Biology
Vice Dean Education, Biosciences
Institute of Structural and Molecular Biology
Division of Biosciences
Darwin Building, UCL Genetics Institute
University College London
MEBO Research Scientific Advisor
Member of the MEBO Institutional Review Board
University College London
London, WC1E 6BT
TITLE OF THE RESEARCH STUDY:
"Therapy for the body and breath malodour disorder Trimethylaminuria (TMAU).
Dr. Shephard's very generous contribution to the MEBO community includes,
- The very informative two-hour long PowerPoint presentations she created, FMO3 enzyme and TMAU (Trimethylaminuria), for the MEBO Washington DC Conference 2011,
- PowerPoint presentation: Pharmacogenetics & Personalized Medicine for the Miami Beach Conference, 2012 Also see post, "Dr. Elizabeth Shephard's presentation : FMO3 - a protein that can multi-task
- Webinar Presentation: Drs. Elizabeth Shephard and Ian Phillips' Webinar 2012 presentation, "FMO3 bugs, genes and drugs," sponsored by RareConnect,
- Spearheaded the nomination of Trimethylaminuria (TMAU) as a condition to be considered for inclusion on the U.S. Social Security Administration's (SSA) 'Compassionate Allowances list'. She submitted her nomination through the National Organization for Rare Disorders (NORD) with a packet compiled by Dr. Shephard and a representatives of MEBO Research in the US and the UK.
- MEBO IRB Member: Dr. Shephard has also volunteered to be a member of the MEBO Institutional Ethics Review Board (IRB),
- MEBO Scientific Adviser: Dr. Shephard has always being available to the MEBO staff to answer our questions,
- Publications: Elizabeth A Shephard, PhD has published many articles in professional journals on FMO3 and TMAU throughout the years.
On behalf of our international community, I would like to extend our most heart-felt congratulations and gratitude to Dr. Elizabeth Shephard for her invaluable service to our community, and wish her the very best in this research endeavor. We are at her beck and call to assist her in whatever is within our power.
Our MEBO Public Relations Director, Karen, is in the process of organizing a worldwide MEBO Fundraising Campaign in support of this very valuable research. More information will be forthcoming in the near future as this project unfolds. We have utmost confidence that any campaign Karen organizes will bear great results, as her Raising Awareness Campaign led to a compassionate outcome from the MRC officials, who directed her towards publishing her story, My body produces an offensively pungent chemical, in the Royal College of General Practitioners (RCGP), InnovAiT, Oxford University Press. InnovAiT 2012; doi: 10.1093/innovait/ins093 in the Oxford Journals of the Oxford University Press, InnovAiT.
Now, MRC writes to Karen and other MEBO Directors who have supported Karen's campaign, to inform us of this remarkable research award.
As a result of Karen's very diligent determination to march forward with our Raising Awareness Campaign, MRC has been very instrumental in introducing Karen to the proper authorities to work with UK DUETs, NHS Evidence, National Institute for Health and Clinical Excellence, to publish 10 body odor related uncertainties / questions, now found in the Library of NHS UK database, about the effects of treatment for TMAU.
Volunteers wanting to join Karen in being a part this historical campaign for our community, are encouraged to contact MEBO...Now, MRC writes to Karen and other MEBO Directors who have supported Karen's campaign, to inform us of this remarkable research award. Volunteers wanting to join Karen in being a part this historical campaign for our community, are encouraged to contact MEBO at email@example.com, so that we may count on your time, talents, or treasure as Karen organizes this endeavor.
I can't overstate how proud I am to be a part of this community!
María de la Torre
Founder and Executive Director
A Public Charity
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