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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, June 20, 2013

Great Progress in the MEBO Raising Awareness Campaign in the UK and Spain

MEBO is constantly pursuing research into other causes of body and breath odor conditions while moving forward around the world with our Raising Awareness Campaign. We are very happy to announce how this campaign is alive and well in the United Kingdom, with the sizeable Research Grant Awarded by the Medical Research Council for a TMAU Therapeutic project. As an Information Officer of the Medical Research Council tells us, this announcement will soon to be published in the Research Councils UK Gateway to Research site,

In addition, the Raising Awareness Campaign has also picked up in Spain, where the government hsa declared 2013 The Year of Rare Diseases in Spain. The rare disease organization in Spain for rare diseases, Federación Española de Enfermedades Raras,(FEDER), assisted in the writing of an article on TMAU, Una vida marcada, in the Madrid paper, La Razón. In this article, Dr. Amaya Belanger-Quintana, M.D., Nutritionist, Nuria Pardillo, and a sufferer who has been very instrumental in this campaign in Spain were interviewed, and the condition and protocol was explained in great detail.

It is through the Raising Awareness Campaign that we are empowered to be more effective when we pursue research grants.
It is only when sufferers like sufferer interviewed in the La Razón article in Madrid, and like Karen in the UK come forward and volunteer to be interviewed, to make phone calls to experts, government agencies, politicians, and the press, that we spread the word about body and breath odor conditions. This is the only way that the medical community and the public at large will understand and take us seriously. It is through the Raising Awareness Campaign that we are empowered to be more effective when we pursue research grants.

You can help MEBO's Mission by supporting the MEBO International Raising Awareness Campaign by becoming a proactive volunteer bringing forth creative ideas of projects you can create and be a part of, participating in the MEBO TMAU Test, and/or by making a donation to MEBO Research using the PayPal button below.

My thanks go out to our international community for all you do for this cause.

[in Spanish]


María de la Torre
Founder and Executive Director

A Public Charity
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