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MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER : 10% OFF
Join/Watch the weekly
TMAU UP Podcasts

Videos : TMAU stories

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

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Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

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Sunday, December 3, 2017

London Meetup yesterday. Karen describes ...

Karen is the longtime organiser of London Meetups.
Here she describes yesterdays London Meetup.
Royal Festival Hall, South Bank, London.

On Saturday 2nd December some of our community chose to meet up on the South Bank in London. The 4 of us chatted for about 4 hours.

Apart from exchanging ideas, we discussed the issues raised by the UK 'TMAU test' survey. It seems that people are finding it more difficult than ever to acquire a TMAU test via the NHS General Practitioner. Some doctors are even suggesting their malodour-suffering patients are mentally unstable and have asked for evidence (for example, pungent clothing!) as a basis for granting a test via the NHS! We are all aware that the NHS has budget restrictions, but we are all adamant that we have as much right to use the NHS, and, therefore to have the TMAU test,  as any other UK citizens.  Another worrying issue we talked about was the higher prevalence of negative test results since 2016. Some people, who tested positive several times prior to 2016, are now testing negative. We are very worried about this trend.

But we didn't just talk about the problems faced by our community. It was a great day out because the weather was perfect and the venue was stunning. South Bank had 7 Christmas trees and the view of the Hungerford and Waterloo bridges, River Thames and the London Eye, was lovely at night. Loads of pubs and restaurants have outdoor areas with heating now, so we were spoiled for choice. Central London at Christmas time is really special.




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A EURORDIS and NORD Member Organization

3 comments:

Maria de la T., Founder and Executive Director, MEBO Research said...

So happy that you guys were able to get together and had a great meeting, beautiful day, and great venue!

Good topics were discussed to be followed up whenever possible.

Dec 4, 2017, 7:54:00 AM
Anonymous said...

An organization named dermetel is selling dmb supplement for $125. Is this legitimate or a scam? No one answers the telephone number and when traced it leads to a cell phone line in Kent.

Dec 16, 2017, 1:26:00 PM
Anonymous said...

This DMB supplement is being produced by Dermetel,org, a non-profit organization based in Washington, D.C. You can look it up on Google. It appears to be a legitimate product, altho we will need to know more about the background of testing, approvals, etc.

Somebody needs to check this out! "If not us, who; if not now, when?"

Dec 27, 2017, 2:46:00 AM
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