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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Tuesday, May 6, 2008

Choline- and betaine-defined diets for use in clinical research and for the management of trimethylaminuria

Marjorie G. Busby MPH, RD, , Leslie Fischer PhD, MPH, RD, Kerry-Ann Da Costa PhD, Dorothene Thompson, Mei-Heng Mar and Steven H. Zeisel MD, PhD

I highly recommend the purchase of this article for all sufferers who have tested positive for tmau. It is a research supported by grants from the National Institutes of Health to Steven Zeisel, to the University of North Carolina Clinical Nutrition Research Unit and Center for Environmental Health and Susceptibility, and to the University of North Carolina General Clinical Research Center.

A low-choline diet that contains high-quality protein and adequate amounts of breads, fruits, and vegetables can be provided to individuals with trimethylaminuria. Acceptable/palatable meal plans can be developed containing levels of choline as low as 100 mg per day. Meal plans should be developed according to individual preferences using the Dietary Guidelines for inclusion of a variety of foods. Based on the analyses of individual foods previously published, foods were grouped according to three levels of choline for use in developing individualized diets (Table 3). Values for betaine are also provided...

full article:
http://linkinghub.elsevier.com/retrieve/pii/S0002822304015743

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