NIH Office of Rare Diseases UNDIAGNOSED DISEASES PROGRAM

Here we go everyone, the answers to our prayers for Bromhidrosis, Halitosis, Underarm Odor, Body Odor sufferers, with conditions not yet listed in NORD's database. Only a few days ago, 19 May 2008, the U.S. National Institute of Health Office of Rare Disease published a research effort entitled Undiagnosed Diseases Program. http://rarediseases.info.nih.gov/Resources.aspx?PageID=31 and http://www.rarediseases.org/ . This is so promising for those of us who suffer from body malodor and have not tested positive for TMAU. In order to participate in this program, you must be referred by a physician, nurse practitioner, or physician's assitant. It's as simple as that! Let's show them support by calling them at 866 444-8806 after reading all the Frequently Asked Questions (FAQs). Make sure you have informed yourself by reading the FAQs section before calling, so that your phone call could be very productive. If enough people participate, we might even get funding for significant research for these conditions. At this time, if your case is accepted for evaluation at NIH, travel, meals, and lodging expenses may be covered for research participants according to NIH policies. This is a great opportunity to get answers to the causes and treatment of your body malodor, and to contribute to research. We will fight for a cure, and this blog can point us in the right direction. It's up to us, the sufferers to pursue the opportunities! Good luck to us all, Maria P. de la Torre (mpdela)