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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, May 31, 2008


Here we go everyone, the answers to our prayers for Bromhidrosis, Halitosis, Underarm Odor, Body Odor sufferers, with conditions not yet listed in NORD's database. Only a few days ago, 19 May 2008, the U.S. National Institute of Health Office of Rare Disease published a research effort entitled Undiagnosed Diseases Program. and . This is so promising for those of us who suffer from body malodor and have not tested positive for TMAU. In order to participate in this program, you must be referred by a physician, nurse practitioner, or physician's assitant. It's as simple as that! Let's show them support by calling them at 866 444-8806 after reading all the Frequently Asked Questions (FAQs). Make sure you have informed yourself by reading the FAQs section before calling, so that your phone call could be very productive. If enough people participate, we might even get funding for significant research for these conditions. At this time, if your case is accepted for evaluation at NIH, travel, meals, and lodging expenses may be covered for research participants according to NIH policies. This is a great opportunity to get answers to the causes and treatment of your body malodor, and to contribute to research. We will fight for a cure, and this blog can point us in the right direction. It's up to us, the sufferers to pursue the opportunities! Good luck to us all, Maria P. de la Torre (mpdela)


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