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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Saturday, May 31, 2008


Here we go everyone, the answers to our prayers for Bromhidrosis, Halitosis, Underarm Odor, Body Odor sufferers, with conditions not yet listed in NORD's database. Only a few days ago, 19 May 2008, the U.S. National Institute of Health Office of Rare Disease published a research effort entitled Undiagnosed Diseases Program. and . This is so promising for those of us who suffer from body malodor and have not tested positive for TMAU. In order to participate in this program, you must be referred by a physician, nurse practitioner, or physician's assitant. It's as simple as that! Let's show them support by calling them at 866 444-8806 after reading all the Frequently Asked Questions (FAQs). Make sure you have informed yourself by reading the FAQs section before calling, so that your phone call could be very productive. If enough people participate, we might even get funding for significant research for these conditions. At this time, if your case is accepted for evaluation at NIH, travel, meals, and lodging expenses may be covered for research participants according to NIH policies. This is a great opportunity to get answers to the causes and treatment of your body malodor, and to contribute to research. We will fight for a cure, and this blog can point us in the right direction. It's up to us, the sufferers to pursue the opportunities! Good luck to us all, Maria P. de la Torre (mpdela)


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