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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Saturday, May 31, 2008

NIH Office of Rare Diseases UNDIAGNOSED DISEASES PROGRAM

Here we go everyone, the answers to our prayers for Bromhidrosis, Halitosis, Underarm Odor, Body Odor sufferers, with conditions not yet listed in NORD's database. Only a few days ago, 19 May 2008, the U.S. National Institute of Health Office of Rare Disease published a research effort entitled Undiagnosed Diseases Program. http://rarediseases.info.nih.gov/Resources.aspx?PageID=31 and http://www.rarediseases.org/ .
This is so promising for those of us who suffer from body malodor and have not tested positive for TMAU. In order to participate in this program, you must be referred by a physician, nurse practitioner, or physician's assitant. It's as simple as that!

Let's show them support by calling them at 866 444-8806 after reading all the Frequently Asked Questions (FAQs). Make sure you have informed yourself by reading the FAQs section before calling, so that your phone call could be very productive. If enough people participate, we might even get funding for significant research for these conditions. At this time, if your case is accepted for evaluation at NIH, travel, meals, and lodging expenses may be covered for research participants according to NIH policies.

This is a great opportunity to get answers to the causes and treatment of your body malodor, and to contribute to research. We will fight for a cure, and this blog can point us in the right direction. It's up to us, the sufferers to pursue the opportunities!

Good luck to us all,

Maria P. de la Torre
(mpdela)

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