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MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER : 10% OFF
Join/Watch the weekly
TMAU UP Podcasts

Videos : TMAU stories

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

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Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

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Saturday, May 31, 2008

TMAU news item : sufferers story on San Diego 10news (part 1)

For Tammy Gobin, her strong malodor began three years prior to this interview, in her early 30s. As is the case for most sufferers, she found some answers by searching the internet, where she learned about the rare genetic disorder, Trimethylaminuria. Yet, according to this article published by 10news.com, "For daycare teacher Tammy Gobin it took nearly two years before she convinced the medical community she had a metabolic disorder that gives off a pungent odor”.

Her medical insurance did not cover her $20,000 medical bills, although she has a medical malodor disorder. This is the reason why it is imperative that extensive research on TMAU and non-TMAU metabolic disorders be carried out, so that the reverse becomes the norm, the patient would first seek diagnosis, information, and treatment from her physician instead of from the internet. Thank you Tammy for being so brave and to share your story to the world for us.


www.10news.com/news/16143045/detail.html

note : part 2 seems unavailable on the internet

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