Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, July 11, 2008

the zinc taste test

Testing is probably the best policy if you have a bloodborne odor problem. Any home test is likely to be more popular. If you have a bloodborne odor problem, it may be worthwhile ruling any deficiences out. In the case of vitamins and minerals testing, this is a home test that is supposed to give a general rough assessment of your zinc status. The senses of taste and smell are supposed to be associated with gustin, a polypeptide dependent on zinc that is suspected to be a taste bud growth factor. The 'taste test' was devised by Professor Derek Bryce-Smith of Reading University. The zinc solution can be bought online. In the USA there is a brand called Zinc Tally, but there are probably cheaper brands.

External Body Odor has been (tenuously ?) associated with zinc, and zinc is also associated with smell/taste function, but it should be deemed very unlikely zinc deficiency play a role in a bloodborne odor problem. Also, the dosages suggested in the link are not a recommendation here. Zinc toxicity can make you feel unwell.

This site explains the Zinc taste test protocol...

1)Optimal zinc levels—An immediate, unpleasant, obviously adverse taste.
2)Adequate Zinc Levels—A definite but not strongly unpleasant taste is noted immediately and tends to intensify with time.
3)Quite Zinc Deficient—No taste noted initially, but develops in 10-15 seconds.
4)Very Zinc Deficient—Tasteless or “tastes like water”

related links:
pubmed search : zinc taste test
video: an endorsement)
zinc and taste perception :
gustin study:

Poll : see below


Post a Comment