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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Saturday, August 16, 2008

Poem : MY SOUL I BARED

MY SOUL I BARED, MY HEART IS BROKEN, MY LIFE IS FILLED WITH PAIN
THE THINGS I WISH THAT I COULD DO HAS LITERALLY DROVE ME INSANE
I'VE WALKED A MILE IN MY OWN SHOES AND DO NOT WISH TO SAY
THAT EVERYTIME I TOUCH A MIRROR MY ENERGY STARTS TO SWAY

I'M TIRED, I'M UPSET, I HAVE NOT MUCH TO DO
BUT WISH THIS NIGHTMARE WOULD END AND FIND OUT WHAT IS TRUE
I PINCH MYSELF SO HARD MY SKIN BEGAN TO BRUISE
HOW AM I AWAKE THIS NIGHTMARE CAN'T BE TRUE

MY SOUL IS WHALING, WIMPERING LIKE SOMETHING HAS DIED
TO BE NORMAL.. I EXTEND MY CONFIDENCE..THEN I HIDE
PEOPLE TAKE THE MOST FRAGILE THINGS IN THIS LIFETIME FOR GRANITE
UFO'S WE ARE, BUT THIS IS EARTH, OUR PLANET

WE ARE NOT THE OUTSIDERS OUR SPIRITS ARE LIKE OUR HOME
WE HIDE BEHIND OUR SOULS, TO US THAT IS OUR HOME
THEY ARE THE OUTSIDERS, WE ARE TRIED AND TRUE
EVERY ROAD WE TAKE LEADS US BACK TO YOU

MY SOUL IS BARED, MY HEART IS FULL, UNTIL THIS WORLD ENDS
ALL IS WELL SAID AND DONE...JUST HANG ON MY FRIENDS.

Stephanie

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