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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


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want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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See RareConnect
rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Wednesday, August 6, 2008

Vacationing and partying on Choline- and betaine-defined diets

When we go on a long deserved vacation or to a special social occasion in which everyone is eating and drinking and we want to be a part of it all, what guidelines can we bear in mind to help us make better choices in order to enjoy ourselves and still manage our odor? Sometimes our options are black and white and decisions easy to make, but frequently, especially in these types of situations, we first need to ask ourselves how much we are willing to break our diet and to sacrifice our odor management protocol. This, of course is a very personal decision. Nevertheless, we can arm ourselves beforehand with as much information as possible of the choline, betaine, protein, and lactose content of foods and beverages in an effort to broaden our social horizons.

Table 3 of this research consists of foods categorized by food group and level of choline and betaine content, and includes the following information,

WHITE WINE, 4oz/120g contains 6.180mg of choline and 0.180mg of betaine per serving.
LIGHT BEER, 12oz/360g, contains 25.416mg of choline and 25.092mg of betaine per serving.
REGULAR BEER, 12oz/360g, contains 34.956mg of choline and 34.992mg of betain per serving.

Note that adjusting menu items to a smaller serving size, such as pork sausage and Danish pastry, allow more variety in the diet while still maintaining the appropriate level of choline and betaine.

A choline-restricted diet is useful in persons with FMO3 deficiency, such as in TMAU, because it diminishes body odor; betaine does not need to be restricted because it is not a substrate for the bacteria in the gut that breakdown choline to form trimethylamine.

Recommends a multivitamin that contains 100% of the DRI for vitamins and minerals, particularly folate [FOLIC ACID] and riboflavin [VITAMIN B2].

full article:
Choline- and betaine-defined diets for use in clinical research and for the management of trimethylaminuria .
Journal of the American Dietetic Association , Volume 104 , Issue 12 , Pages 1836 - 1845
M . Busby , L . Fischer , K . Da Costa , D . Thompson , M . Mar , S . Zeisel
http://linkinghub.elsevier.com/retrieve/pii/S0002822304015743

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