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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Friday, August 8, 2008

Want to build muscle and need extra protein with your choline diet?

Persons who wish to build muscle with cardiovascular exercise and weights can increase their protein intake with the inclusion of a soy beverage and/or adequate amount of egg white, to provide adequate amounts of high-biological value protein, according to a research study supported by grants from the National Institute s of health to Steven Zeisel, the University of North Crolina Clinical Nutrition Research Unit and Center of Environmental Health and Susceptibility, and the University of North Carolina General Clinical Research Center. However, it is important to emphasize that soy protein beverage was administered to persons with a 25% to 50% repletion diet, or percentage indicating the approximate amount of choline based on the adequate intake, in this study. Those with 75% or 100% repletion diet were not administered a soy protein beverage as it would be odor producing.

It is safer to just go with the egg whites, since 1/4 cup/60g weight of liquid egg whites contain 1.410mg of choline and 0.250mg of betaine. I think it would be safe to say that you can have this a number of times a day as you keep track of your choline intake to your personal non-odor producing level.

Recommends a multivitamin that contains 100% of the DRI for vitamins and minerals, particularly folate [FOLIC ACID] and riboflavin [VITAMIN B2].

It is important to note that not all researches seem to agree with the consumption of soy products in a low choline-diet.

Diets at the lowest choline levels would require inclusion of a soy beverage and/or adequate amounts of egg white, as was used for this research, to provide adequate amounts of high-biological value protein. A multivitamin and mineral supplement would be required. For example, a very-low-choline diet might include the soy protein beverage; five servings of fruits and vegetables; five servings of breads, cereals, and other grains; adequate amounts of low-choline fats and oils; and one dessert food each day. It would be difficult to include either dairy products or meats at this level of choline restriction. However, some variety in high-quality protein in the diet can be achieved by consulting Table 3 and decreasing the number of servings from fruits, vegetables, and grains while adding different protein sources such as legumes, nuts, and cottage cheese. This type of planning should be done by the dietitian/clinician to assure that the level of choline remains at approximately 100mg per day and the diet contains the required high-quality protein as well as an adequate variety of other nutrients.

full article:


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