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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, August 8, 2008

Want to build muscle and need extra protein with your choline diet?

Persons who wish to build muscle with cardiovascular exercise and weights can increase their protein intake with the inclusion of a soy beverage and/or adequate amount of egg white, to provide adequate amounts of high-biological value protein, according to a research study supported by grants from the National Institute s of health to Steven Zeisel, the University of North Crolina Clinical Nutrition Research Unit and Center of Environmental Health and Susceptibility, and the University of North Carolina General Clinical Research Center. However, it is important to emphasize that soy protein beverage was administered to persons with a 25% to 50% repletion diet, or percentage indicating the approximate amount of choline based on the adequate intake, in this study. Those with 75% or 100% repletion diet were not administered a soy protein beverage as it would be odor producing.

It is safer to just go with the egg whites, since 1/4 cup/60g weight of liquid egg whites contain 1.410mg of choline and 0.250mg of betaine. I think it would be safe to say that you can have this a number of times a day as you keep track of your choline intake to your personal non-odor producing level.

Recommends a multivitamin that contains 100% of the DRI for vitamins and minerals, particularly folate [FOLIC ACID] and riboflavin [VITAMIN B2].

It is important to note that not all researches seem to agree with the consumption of soy products in a low choline-diet.

Diets at the lowest choline levels would require inclusion of a soy beverage and/or adequate amounts of egg white, as was used for this research, to provide adequate amounts of high-biological value protein. A multivitamin and mineral supplement would be required. For example, a very-low-choline diet might include the soy protein beverage; five servings of fruits and vegetables; five servings of breads, cereals, and other grains; adequate amounts of low-choline fats and oils; and one dessert food each day. It would be difficult to include either dairy products or meats at this level of choline restriction. However, some variety in high-quality protein in the diet can be achieved by consulting Table 3 and decreasing the number of servings from fruits, vegetables, and grains while adding different protein sources such as legumes, nuts, and cottage cheese. This type of planning should be done by the dietitian/clinician to assure that the level of choline remains at approximately 100mg per day and the diet contains the required high-quality protein as well as an adequate variety of other nutrients.

full article:


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