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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, September 23, 2008

So much to discuss tomorrow in our Women's Conference Call

Tomorrow is our Women’s Conference Call. Since I missed the last Women’s call and the General Call because I was on my trip to London, I am so very much looking forward to this call tomorrow. So much has happened not only with our meet-up at the Thames Festival, but also with Sonya and Rebecca’s meet-up, and with hopereturns doing an interview at a local TV program about her story. I bet a lot more has happened as well. We have much to share! It’ll be open forum again, so please bring all your questions and concerns, and all the stories you would like to share with us.

Did you know that since I left the U.S. to go to London last Thursday, 11 September, sixteen (16) new members registered in the MSN Body Odor Support Group Forum? I would like to welcome all of you to our Conference Calls! The first one coming up is our bi-weekly Women’s Conference Call tomorrow, Wednesday, at 8:00p.m./EST. On Sunday afternoon, we are holding our bi-weekly General Conference Call at 2:00p.m. See the center sidebar of this blog with all the details on how to dial up for both these conference calls; they are FREE if calling from the U.S. You may choose to participate in the discussions or, if you prefer, you may chose to just listen in – both are perfectly acceptable. Hope to visit with you then.

Free USA-based phone conferences
Women's Conferences: normally every other Wednesday 8pm EST. Next call: September 24th at 8pm EST

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier

Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phoneline can be used anytime to talk to other sufferers
You don't need to talk. You can just listen


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