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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Thursday, September 25, 2008

Thanks to all the women who attended our Women's Conference Call tonight

On our Women’s Conference Call today many callers wanted to know more specifics about the Thames Festival 2008 Meet-up in London that I attended, such as what it was like meeting sufferers from various parts of the world, and what we discussed in the meet-up. I told my story, and we eventually wound up mainly talking about the various odor-reducing diets discussed at the meet-up that many of us have also tried.

A handy tool called Nutrient Checker was recommended to assist in our process of food selection as it has a great deal of information on the contents of the various food groups. See http://mpdela.blogspot.com/2008/06/nutrient-checker.html for help in this regard.

We discussed how each of us responds differently to the various foods, not only in the degree of odor they may produce in us, but also in our respective food tolerances and allergies. In the end, we realized that we also need to test our bodies for food intolerances and allergies in our efforts to create and maintain a diet that decreases our odor. We discussed cleansing diets, vegetarian, vegan, and dairy-free diets, low sugar diets, low choline diets, and the importance of consuming no less that 425mg of choline a day for women and 500mg for men.

The point was brought up about how a diet that is too low in choline and vitamins may produce the hair loss that many on the call seem to be currently experiencing. Biotin, also known as Vitamin H or Vitamin B7, is helpful in strengthening hair and preventing hair loss. We also discussed how a higher consumption of protein could produce greater energy, since some sufferers are feeling too weak on the low choline diet. Egg whites can be a good source of protein while on a low choline diet, although some people do not handle eggs and egg products well, but others do, so they can get an energy boost from it.

A big warning goes out to people on low choline diets regarding their vitamin B Complex selection, read the labels well. Many vitamin B complexes contain choline, and it will be noted on the bottle. So avoid those complexes that do have choline. It is much more fun to eat delicious foods for our choline daily requirement than to take it in a pill.

It seemed that the main need of the callers today was to discuss odor-reducing diets and to find out more information about the Thames Festival 2008 Meet-up in London. Thanks to those who participated in the call, it was very productive.

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