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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, October 3, 2008

Fecal Body Odor : same as drinking very diluted sewage water ?

With regards what is known on the forums as 'Fecal Body Odor' (amongst other fecal/gas type smells), everyone is obviously mostly distressed about the smells. However there must be a good chance they feel as bad as they smell, since those toxins seem to be circulating in the blood (hence the smell through the skin). In effect, it must be similar to habitually drinking very diluted sewage water. Not enough to make you acutely ill, but enough to make you feel permanently vaguely unwell. You could think of it as having a low grade gut infection, rather than acute poisoning. A sort of auto-intoxication seems to be going on. Whilst the medical system is highly primed for acute infections, they don't seem much interested in quality of life 'low-grade' complaints. Currently the few research papers that mention a fecal body odor would likely be to do with very serious liver damage, whereas we know that it would be possible for someone with FBO to win the Olympics marathon or any sort of achievement. Even with trimethylaminuria, the PH is very alkaline and when it is in high levels in the blood, it can't be too good for the blood circulation which needs to keep within a strict PH.

So if people with Fecal Body Odor feel bad about poor concentrating and suchlike, don't be too hard on yourself, because as well as the smell you are likely to be pretty much suffering mildly untreated poisoning. Probably most/all can think of it as having a low-grade constant gut infection.

Hopefully someday the syndrome will be fully understood and recognised.

Poll below


click here for Bloodborne Halitosis poll

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