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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Friday, October 17, 2008

Research into a breath test for testing for Volatile Organic Compounds associated with serious illnesses.

Scientists in Swansea UK are working on a breath test that detects Volatile Organic compounds (VOCs) associated with certain serious illnessess. This is a similar line of testing that Dr Preti of the Monell Chemical Senses Center mentioned at a conference earlier this year

This is likely the kind of test in the future that would be the starting point test for metabolic body odors and halitosis, and local halitosis. Possibly localalized halitosis would make the reading awkward for detecting systemic odors. They are designing it to try and detect serious health complaints but possibly someday when the number of metabolic/bloodborne/systemic odor sufferers is known it could naturally be a part of the diagnostic and monitoring tests.

...The technology analyses the concentrations of particular chemicals and compounds associated with disease in a patient's breath, for example ammonia in relation to hepatitis and acetone in relation to diabetes.

While breath tests are at present less developed than traditional urine or blood tests, they are much less invasive, cheaper and, with improved scientific methods, could offer new potential for the rapid diagnosis and monitoring of illness, increasing the patient's chances of survival.

However, the research is still in the early stages and could take years before it is ready for NHS use...

full article from daily telegraph October 2008

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