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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Monday, October 20, 2008

Sheri's story : making sense of it

Note: Permission is always asked for posts in this category.

This is a post by Sheri on MSN body odor suport group forum that encapsulates her story.

...For me, it has been FBO since preteen yrs and I am 41 now! For yrs, I thought it was a female a recurrent infection or something. I have even been asked several times if I have had an AIDS test! (which I had after being asked this repeatedly...results were neg, thank God) when I asked why I was being asked that question each time I went to my gyno regarding this problem, I was always told that AIDS patients frequently suffer many vaginal right after another. BUt in my case, tests always came back neg. for infections. Then they would just say either they couldnt smell anything or that I should consider counceling. It was a nightmare that got me nowhere.

But then in '06, I had to have a hysterectomy. I thought my troubles were solved!!! Long story short, I was 39 yrs old before I found out the smell wasnt in just one localized area. Then the realization hit that the odor was coming from my ENTIRE body. UHHG! I was devastated.

But the light at the end of the tunnel is that there IS a viable way of significantly reducing the odor.....DIET!! DIET!! DIET!!

For me it is mainly dairies, red meats, any kind of processed food especially, is the worst. I know beyond a shadow of a doubt that if I consume these foods, I will be out of commission for a few days....and then it is on me.

What I am trying to say is, I wonder how many odor sufferers are under the thinking that is only localized odor that they are dealing with when in fact, it may be whole body odor?


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