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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Tuesday, October 21, 2008

Women's Conference call this Wednesday - time change

As we agreed upon in the last Women's Conference Call, the time of our future calls has been changed from 8:00p.m./EST to 9:00p.m. because many ladies are unable to attend so early in the Central and Pacific time zones. This upcoming call on Wednesday, October 22nd, is going to be an open discussion forum. So please, bring forth any concerns you may have.

A number of ladies have started the odor-reducing management protocol recommended by the National Institute of Health, which I posted in this blog, An odor-reducing management protocol discussed in the Thames Festival meet-up, and a few of you have been emailing me asking many questions about this process. Others have called me on the phone to discuss it further. As a result, I was able to explain the various sources of odor that Arun had explained to us in the meet-up, and how this protocol addresses these sources. This discussion has helped some of the ladies make sense of the need to follow this protocol correctly in order for it to be effective, as it has helped my son and other sufferers as well control their odor and are currently odor-free most of the time.

This and any other topic of discussion could be addressed in this women's conference call, and all ladies are invited to participate. To each of the new members that have never called in before, keep in mind that you can call in and introduce yourself to tell us a little about yourself, or you can just call in to listen without speaking until you feel more comfortable speaking later on. The instructions on how to call is found in the center sidebar of this blog under 'MSN groups Body Odor forum : FREE (long distance call plan) Phone Conferences'. Yes, it is a Free Conference line if calling from the US, and if you have a free long distance plan.

I hope you can all make it to this call. It will be a very good opportunity to discuss odor management techniques. I always look forward to these calls very much. Talk to you then.



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