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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Tuesday, November 4, 2008

Clinical trial looking for 'known' or 'suspected' metabolic cases

Early news:

The NIH ORD info page on Trimethylaminuria is currently informing that there is a clinical trial ongoing looking for people with known or suspected metabolic disorders of any age. This may be an opportunity for metabolic body odor and halitosis to get recognised by the system. It looks more a training program than anything.

This study will provide medical evaluations for patients with known or suspected metabolic and genetic disorders. It will allow NICHD investigators and trainees experience in diagnosing, managing, and treating patients with metabolic and genetic disorders who may not be eligible for an active NIH research trial. Participants in this protocol will only have tests and procedures used in the standard practice of medicine; there will be no experimental tests or treatments. Patients who are found eligible for an active research protocol will be offered participation in that study. The medical evaluations in this trial may uncover new disease processes that prompt new research initiatives.

Did you apply ?

Study ID Numbers: 020023, 02-CH-0023
First Received: October 27, 2001
Last Updated: October 30, 2008 Identifier: NCT00025870
Health Authority: United States: Federal Government

Contact: Patient Recruitment and Public Liaison Office (800) 411-1222
Contact: TTY 1-866-411-1010

National Institutes of Health Clinical Center, 9000 Rockville Pike, Bethesda, Maryland, United States, 20892

Keywords provided by National Institutes of Health Clinical Center (CC):
DNA Testing
Dysmorphic Syndromes
Developmental Delay
Genetic Counseling
Molecular Genetics

Study placed in the following topic categories:
Metabolic Diseases
Genetic Diseases, Inborn
Metabolic disorder

Additional relevant MeSH terms:
Pathologic Processes
Disease processed this record on November 03, 2008


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