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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, December 13, 2008

Conference Call Tomorrow with Arun

Tomorrow is our last scheduled conference call with Arun before he leaves for Asia. He will be organizing impromptu calls while he’s in Asia, but will have difficulty joining us in our regularly scheduled calls at 2:00p.m. every other Sunday because of the time difference.

He’ll have all the news about their meet-up today in London!

Please join us in wishing Arun bon voyage!
Today we are having our UK XMas Meetup in London 12pm onwards and I would love to tell you guys about it at our Conference Call on Sunday.

This will be the last regular call I will be attending for 4 months (Dec 16th-April 16th) as I am travelling around Asia on Tuesday. I hope to arrange impromptu calls periodically (I will advertise these on the message board) and I hope a few of you will be able to join in.

By the time I get back from Asia, we will already have 2 months of fresh postings on our new site and you guys across the pond will have a new president!

I will miss our MSN site as it has served us for many years and through a variety of transitions and management (it was once a part of the MSN Hyperhidrosis site). However, our new site will have Multiple Message Boards just like MSN!

I am also keen to explore a link with Messenger so we can chat additionally to the conference calls. I think the move away from MSN is fortuitous because the absence of a Message Search facility on a site like this is just too great a handicap.

Well, I hope loads of you guys are able to make it to my last Conference Call before I fly out. Catch you Sunday hopefully!
13DEC08 12:15AM/EST

Conference Call
Sunday, December 13th, 2pm EST.
USA-based : (712) 432 1620
access #: 391629#
see sidebar for full details


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