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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, December 15, 2008

Metabolic body odor information for health experts

This post will be used to compile information in order to persuade any interested medically-based experts and/or physicians about the concept of metabolic body odor. It may also be a good reference link for any readers wanting to convince a health worker of the concept. Mainly it will be about metabolic body odors other than trimethylaminuria, but may include TMAU links in order to convince readers of the concept of untreated metabolites circulating in the main blood circulation (especially with regards the probable number of sufferers). It will be updated as needed. For any interested parties reading, the main type of metabolic body odor type seems to 'gut-smells' body odor, although it can vary even from that. What is known on the forums mostly as 'Fecal body odor'.

3.8% fail the TMAU urine test. pubmed paper 1996
smell of schizophrenia
Neonatal with encephalopathy and later a pungent cabbage odor. H2S and methanethiol in urine. Makes full recovery. (Anecdotal paper:1997)
Portal shunt in girl. TMAU reported as only symptom
Number of trimethylamine cases in random international samples
Dimethylglycinuria. 1st (and only ?) reported case
Orphanet on TMAU: The prevalence is estimated to be approximately 1 %


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