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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
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or contact
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Update : discount is suspended
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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, December 15, 2008

Metabolic body odor information for health experts

This post will be used to compile information in order to persuade any interested medically-based experts and/or physicians about the concept of metabolic body odor. It may also be a good reference link for any readers wanting to convince a health worker of the concept. Mainly it will be about metabolic body odors other than trimethylaminuria, but may include TMAU links in order to convince readers of the concept of untreated metabolites circulating in the main blood circulation (especially with regards the probable number of sufferers). It will be updated as needed. For any interested parties reading, the main type of metabolic body odor type seems to 'gut-smells' body odor, although it can vary even from that. What is known on the forums mostly as 'Fecal body odor'.

3.8% fail the TMAU urine test. pubmed paper 1996
smell of schizophrenia
Neonatal with encephalopathy and later a pungent cabbage odor. H2S and methanethiol in urine. Makes full recovery. (Anecdotal paper:1997)
Portal shunt in girl. TMAU reported as only symptom
Number of trimethylamine cases in random international samples
Dimethylglycinuria. 1st (and only ?) reported case
Orphanet on TMAU: The prevalence is estimated to be approximately 1 %

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