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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, February 5, 2009

IABR compiling a Database of volatile substances (such as in breath, flatus, skin, feces, urine)

The International Association for Breath Research (IABR), founded in 2005, is compiling a database of all known volatile substances in human and animal gases. It will include data on all gases no matter how they escape the body (breath, skin, flatus, urine, feces etc). The 'volatomics' database should be completed and viewable this year. The public will be able to view it on the IABR website

This will be another weapon in getting metabolic body odor and halitosis recognised, as well as hopefully stimulating interest and research. It will be a reference point that people can refer to. For instance, in convincing doctors, or in looking for previous records of certain compound smells (instead of having to look pubmed). It will be stronger evidence than when currently have.

Based on discussions held at the IABR Conference in Prague in September 2006, IABR has decided to support the creation of a comprehensive database of research on human and animal gases. IABR’s goal is to complete the design, beta testing and refinement of this “volatomics” database by 2009, after which it will be made accessible to both IABR members and the public via the IABR website.

The project is being coordinated by Norman Ratcliffe of the University of the West of England (UWE), who conceived this project in 2005 and had already begun working on it with the help of a graduate student, James Kingscott. He is now recruiting other IABR members to assist with either the design phase or the beta testing, or both phases, that will follow in 2009. Other members of the design committee include Anton Amann (Innsbruck), and Martin Pienz (Innsbruck), who has generously agreed to program the database for web-hosting in MySQL format...

...As currently envisaged, the database will contain data from studies of exhaled breath as well as other sources of endogenously-derived gases, such as skin, urine, faeces and flatulence. Each record in the database will be based on a specific report from some published source, such as a journal, book, conference program, or on-line publication.

Visitors to the IABR website will be able to both search existing records and enter new records using a series of related hierarchical forms which, to simplify data entry, will make extensive use of ‘pull down’ menus and pre-defined lookup tables.


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