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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Thursday, February 5, 2009

IABR compiling a Database of volatile substances (such as in breath, flatus, skin, feces, urine)

The International Association for Breath Research (IABR), founded in 2005, is compiling a database of all known volatile substances in human and animal gases. It will include data on all gases no matter how they escape the body (breath, skin, flatus, urine, feces etc). The 'volatomics' database should be completed and viewable this year. The public will be able to view it on the IABR website

This will be another weapon in getting metabolic body odor and halitosis recognised, as well as hopefully stimulating interest and research. It will be a reference point that people can refer to. For instance, in convincing doctors, or in looking for previous records of certain compound smells (instead of having to look pubmed). It will be stronger evidence than when currently have.

Based on discussions held at the IABR Conference in Prague in September 2006, IABR has decided to support the creation of a comprehensive database of research on human and animal gases. IABR’s goal is to complete the design, beta testing and refinement of this “volatomics” database by 2009, after which it will be made accessible to both IABR members and the public via the IABR website.

The project is being coordinated by Norman Ratcliffe of the University of the West of England (UWE), who conceived this project in 2005 and had already begun working on it with the help of a graduate student, James Kingscott. He is now recruiting other IABR members to assist with either the design phase or the beta testing, or both phases, that will follow in 2009. Other members of the design committee include Anton Amann (Innsbruck), and Martin Pienz (Innsbruck), who has generously agreed to program the database for web-hosting in MySQL format...

...As currently envisaged, the database will contain data from studies of exhaled breath as well as other sources of endogenously-derived gases, such as skin, urine, faeces and flatulence. Each record in the database will be based on a specific report from some published source, such as a journal, book, conference program, or on-line publication.

Visitors to the IABR website will be able to both search existing records and enter new records using a series of related hierarchical forms which, to simplify data entry, will make extensive use of ‘pull down’ menus and pre-defined lookup tables.

http://www.iabr.li/

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