Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out
March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, March 20, 2009

'Over the counter' celiac home test in the UK and NZ

The freedom to test is something very helpful to conditions such as metabolic body odor and halitosis, where sufferers are likely dismissed by doctors as wasting time, and so don't manage to get tested at all. Someday anyone will be able to pay for any test, and then you can say peoples own health is in their own hands. At the moment the government bodies are in charge of our health ultimately.

In the UK (and New Zealand, as far as we know), one helpful test that is now available over the counter (or on the internet) for a fee is a reliable(?) home test for celiac. While celiac does not cause metabolic body odor (e.g. fecal body odor), it probably makes sense for someone with fecal body door to look for anything that may contribute to a dysbiotic condition of the gut (until the day the government says : the body odor and halitosis clinic we ordered to be set up has now shown what causes fecal body odor and these are the factors of the syndrome).

The gold standard test for celiac is a biopsy, but there are a collective group of blood tests that are normally used since they are easier and also collectively are almost certain to be specific and sensitive for almost every case.

The group of tests are :

  • Serologic Tests
  1. EMA (Immunoglobulin A anti-endomysium antibodies)
  2. AGA (IgA anti-gliadin antibodies)
  3. DGP (Deamidated gliadin peptide antibody)
  4. tTGA (IgA anti-tissue transglutaminase

the AGA and EMA tests are now probably considered outdated and unreliable outdated. The 'vital' new test nowadays seems to be the transglutaminase test.

The celiac sprue association website says :
Deamidated gliadin peptide (DGP) antibodies tests developed in 2007 in combination with Tissue transglutaminase (TTG) antibodies and have better accuracy than native gliadin antibodies. Multiplex immunoassay (MIA) measures multiple antibodies simultaneously providing with reduced turnaround time and cost. This test for antibodies is as accurate as ELISA for the presence of celiac disease. Rational combination testing can help identify patients who need intestinal biopsy.
Anibiotech of Finland have developed a home test that detects transglutaminase reaction. The test can be done in the form of a finger-prick test at home. If it is negative you cannot be totally sure you don't have celiac (false negative), but if you are positive it's very likely you have celiac. The person could then go on to test through their Dr.

If nothing else, it's a cheap way of at least ruling out something that is likely to be detrimental to your health, if not the reason for smelling.

Update: The Biocard celiac home test seems to be now available in the USA and other countries:
Example seller of Biocard Celiac test in USA

Manufacturers of Biocard
example of an online seller in the UK


Post a Comment