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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, April 7, 2009

TV Show : GOOD MORNING AMERICA to Run Segment on Hyperhidrosis

In a Good Morning America segment... we'll have a high-impact opportunity to highlight the facts and myths about hyperhidrosis.The International Hyperhidrosis Society, founded by Lisa J Pieretti, Executive Director, has been the recipient of 32 Third-Party Awards to date, including the prestigious 2008 Gold Triangle Award from the American Academy of Dermatology for furthering the understanding of dermatologic issues and encouraging healthy behaviors in the care of skin. You may subscribe to their Newsletter or to participate in Clinical and Market Research conducted by scientists, healthcare professionals, and manufacturers hoping to recruit either market or clinical study participants.

Their multilingual site, website, is rich in valuable information geared toward adults, teens, medical professionals, and the press.

In a Good Morning America segment...we'll have a high-impact opportunity to highlight the facts and myths about hyperhidrosis. With the incredibly generous efforts of an IHHS friend named Sophia Z., who has palmar hyperhidrosis, and IHHS founding board member David M. Pariser, MD, the physician who first treated her, millions of people will have a chance to learn more about excessive sweating. Sophia also allowed the GMA film crew to tape her receiving a Botox treatment at the dermatologist's office...


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