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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
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Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Friday, April 17, 2009

Women's Conference Call Synopsis from Glenna


Last night, our women’s conference call was full of synergy and energy. We had a lot of fun, so much fun that the call lasted 3 ½ hours. I want to thank Melissa for all of her help in creating so much energy and enthusiasm during the call. It was great to have Debra from Canada on. Debra is one of the sweetest people I have ever known. Jessica brought laughter with her on the call, as she usually does on any call she participates in. Cheryl was on and really happy that she had a chance to talk to “adults” she stated. It was great talking to her on her first women’s conference call. Cheryl just joined our board, within the last month. Theresa and Ms. Trish found that they had some similar issues in common and brought some comfort to each other. (I apologize to anyone that I may have missed here.)

We discussed several interesting issues. Among those issues, we talked about therapists, and shared information regarding past experiences with them. Cheryl and Jessica discussed a work at home project. Cheryl has a lot of experience making crafts with magazines and Jessica suggested that she could experiment with shoe boxes, using them to make purses, etc. That was really interesting and Cheryl thinks she can work with the information she received. We discussed the usual topics like “friendships,” and “diet.” All in all, the conversations were great and we all had a lot of fun!

My sincere thanks to everyone that made it on the call! Honestly, I felt a divine moment or two pass as we talked and giggled late into the night. I am sure that most of us were exhausted, but the experience was so totally worth it! Anytime we can come together and share our hurts, triumphs, desires, etc., it is truly a divine situation, in that no one else can understand us, like we can understand each other. I look forward to the next call and I hope that we will have even more women on the call.

Cheers and Best Wishes,
Glenna

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