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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Tuesday, May 19, 2009

Australian Trimethylaminuria Foundation Fund : You can now donate online

Australian Trimethylaminuria Foundation Fund : You can now donate online

Regular readers will be aware that the Australian Trimethylaminuria Foundation are co-ordinating in a Trimethylaminuria research proposal led by Dr John Christodoulou. It is now possible to help donate to the fund online, as can be seen on this page : donate to the Trimethylaminuria research proposal .

Rob Brown, the chairman of the Australia TMAU Foundation, will no doubt keep us updated. Their website plans to host it's own forum, but in the meantime Rob can usually be found on his TMAUcure Yahoo Forum.

As Rob says
The Australian Trimethylaminuria Foundation (ATF) serves people with trimethylaminuria (TMAU) and other as yet undiagnosed or undescribed genetically mediated malodour disorders, and their friends, families and supporters.

The ATF’s primary aims are:
1. to facilitate scientific research into better treatments and a cure for TMAU.
2. to provide support for sufferers of TMAU and
3. to promote awareness of TMAU within the medical profession and within the wider community.

The ATF receives no financial support from government agencies but functions by way of donations and the voluntary work of its members.
TMAU is the only accepted 'bloodborne smell' disorder (if a Dr has ever heard of it), but the enzyme bearing the burden of that problem, FMO3, oxidizes many sulfides and amines. So it could be a case that FMO3 is responsible for a lot of various smells, in which case any FMO3 research would be of benefit if this turned out to be a factor. Since both the treatment proposals in this research are to do with FMO3, it would likely be of benefit for any FMO3 smell issues.

Related links:
Australian TMAU Foundation Fund : You can now donate online
Australian Trimethylaminuria Foundation
Trimethylaminuria research proposal led by Dr John Christodoulou
TMAUcure Yahoo Forum
Blog post on the Trimethylainuria research proposal


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