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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Tuesday, May 19, 2009

Australian Trimethylaminuria Foundation Fund : You can now donate online

Australian Trimethylaminuria Foundation Fund : You can now donate online

Regular readers will be aware that the Australian Trimethylaminuria Foundation are co-ordinating in a Trimethylaminuria research proposal led by Dr John Christodoulou. It is now possible to help donate to the fund online, as can be seen on this page : donate to the Trimethylaminuria research proposal .

Rob Brown, the chairman of the Australia TMAU Foundation, will no doubt keep us updated. Their website plans to host it's own forum, but in the meantime Rob can usually be found on his TMAUcure Yahoo Forum.

As Rob says
The Australian Trimethylaminuria Foundation (ATF) serves people with trimethylaminuria (TMAU) and other as yet undiagnosed or undescribed genetically mediated malodour disorders, and their friends, families and supporters.

The ATF’s primary aims are:
1. to facilitate scientific research into better treatments and a cure for TMAU.
2. to provide support for sufferers of TMAU and
3. to promote awareness of TMAU within the medical profession and within the wider community.

The ATF receives no financial support from government agencies but functions by way of donations and the voluntary work of its members.
TMAU is the only accepted 'bloodborne smell' disorder (if a Dr has ever heard of it), but the enzyme bearing the burden of that problem, FMO3, oxidizes many sulfides and amines. So it could be a case that FMO3 is responsible for a lot of various smells, in which case any FMO3 research would be of benefit if this turned out to be a factor. Since both the treatment proposals in this research are to do with FMO3, it would likely be of benefit for any FMO3 smell issues.

Related links:
Australian TMAU Foundation Fund : You can now donate online
Australian Trimethylaminuria Foundation
Trimethylaminuria research proposal led by Dr John Christodoulou
TMAUcure Yahoo Forum
Blog post on the Trimethylainuria research proposal

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