Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, June 9, 2009

Skype for free internet phone calls and conferences

NOTE It has just been noticed that only 5 people can be in a Skype Conference, which greatly limits this as an option. With the coming of the internet, people with body odor or halitosis, especially systemic body odor, have at last found support throughout the world, and discovered they are not the only ones who have systemic body odor (and in fact, it seems not uncommon). Ways of communicating in different forms is good for the soul and also good for mobilizing action to find solutions to systemic body odor. Nowadays with a computer and broadband connection, people can 'phone' other Skype members using their computer via Skype for free, anywhere in the world. It can also be used for free conference calls. All that needs to be done is download the Skype program (Skype is owned by ebay) and have a microphone and headphones, then you open the Skype program and it will install itself in a simple manner. You also have to sign up to Skype (it's free and only requires a username and password) and then you will quickly see how to make free 'VoIP calls'. you can get a cheap mic/headset (the kind they use in call centers) from the likes of Walmart and thats all you need. You use your computer to make Skype calls (mic : mic socket, headphone : headphone socket) With Skype you can call Skype members anywhere in the world for free by clicking on the icon on your desktop. the sound quality is far better than on the phone. It also has the ability to do free phone conferences, where more than 2 people can talk in a 'conference room' Skype makes its money by people signing up more fully for their other services, such as skype to landline. There are many of these 'voice over IP' companies but Skype is the leader and very simple to get started with, as well as being free.

What you needBroadband connection (probably) Headset (mic and headphone like used in callcenter. Cheap ones are maybe $10 from Walmart) Download Skype program Register with Skype (username and password) Install it Click on Skype logo and make a call
BenefitsFree for skype to skype calls Much better sound quality than phone Contact anyone in the world Can do Skype conferences
Skype help pages: Call someone who's on Skype


Post a Comment