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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
Read more/less

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Tuesday, June 9, 2009

Skype for free internet phone calls and conferences

NOTE
It has just been noticed that only 5 people can be in a Skype Conference, which greatly limits this as an option.
http://www.skype.com/intl/en/help/guides/skypeformac/skypefeatures/conference.html

With the coming of the internet, people with body odor or halitosis, especially systemic body odor, have at last found support throughout the world, and discovered they are not the only ones who have systemic body odor (and in fact, it seems not uncommon). Ways of communicating in different forms is good for the soul and also good for mobilizing action to find solutions to systemic body odor.

Nowadays with a computer and broadband connection, people can 'phone' other Skype members using their computer via Skype for free, anywhere in the world. It can also be used for free conference calls.

All that needs to be done is download the Skype program (Skype is owned by ebay) and have a microphone and headphones, then you open the Skype program and it will install itself in a simple manner. You also have to sign up to Skype (it's free and only requires a username and password) and then you will quickly see how to make free 'VoIP calls'. you can get a cheap mic/headset (the kind they use in call centers) from the likes of Walmart and thats all you need. You use your computer to make Skype calls (mic : mic socket, headphone : headphone socket)

With Skype you can call Skype members anywhere in the world for free by clicking on the icon on your desktop. the sound quality is far better than on the phone.

It also has the ability to do free phone conferences, where more than 2 people can talk in a 'conference room'

Skype makes its money by people signing up more fully for their other services, such as skype to landline.

There are many of these 'voice over IP' companies but Skype is the leader and very simple to get started with, as well as being free.

http://www.skype.com


What you needBroadband connection (probably)
Headset (mic and headphone like used in callcenter. Cheap ones are maybe $10 from Walmart)
Download Skype program
Register with Skype (username and password)
Install it
Click on Skype logo and make a call
BenefitsFree for skype to skype calls
Much better sound quality than phone
Contact anyone in the world
Can do Skype conferences


Skype help pages:
Call someone who's on Skype

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