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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, September 25, 2009

British TV programme looking for potential TMAU tester

The new UK trimethylaminuria website, , has been contacted yet again about a media opportunity for a volunteer in the UK. The owner writes on this page on the website ...

Channel 4 to feature TMAU

Channel 4 to feature TMAU. WE NEED YOU to volunteer

I have been contacted by a TV producer who wants to feature Trimethylaminuria.

Please give it serious consideration, it would be a fantastic opportunity to highlight our cause.

Here's the email from Vicki Cooper, This e-mail address is being protected from spambots. You need JavaScript enabled to view it

I'm a producer working on the new series of 'Embarrassing Bodie's for Channel 4. Whilst I realise the title is of the series is attention grabbing, the show offers fantastic health advice and myth dispelling about things people would rather not discuss. If you haven't seen 'Embarrassing Bodies', you can watch some recent episodes on 4OD - and take a look at the BAFTA award winning website here We are really keen to find a TMAU case study for the new series. I am aware of the social stigma associated with TMAU - the aim of featuring a case study on Embarrassing Bodies would be to expose the myths around it and also de-stimgmatise the condition. From what I have read, there could be a lot of other people hiding themselves away unaware that they have a medical condition and many Doctors don't even recognise it. We are ideally looking for someone who is undiagnosed or has only just discovered the condition and isn't on a treatment plan yet, so we can refer them to a specialist and follow their journey/improvement. Best wishes, Vicki

Vicki is very approachable and will talk through any concerns or questions you have without any commitment to doing anything.

Dr Lachmann is 'on board' as well.

Please email Vicki at This e-mail address is being protected from spambots. You need JavaScript enabled to view it , please mention this website ( when contacting Vicki.

You can also use the contact form on the website if you prefer and I will forward your messages on.

Embarrassing bodies has been running for a few series on channel 4 (one of the main free to air channels in the UK). Usually the cases take on the structure of someone going to the shows 'Dr' with an undiagnosed problem, who then refers them to an expert, and then the story ends happily (in this case, presumably with a diagnosis of TMAU and advice on the TMAU protocol). Normally each case gets around 5 minutes airtime (?). Good luck to any brave volunteers. Your place in the group hall of fame is guaranteed !


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