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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
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or contact
Ubiome Gut EXPLORER
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Update : discount is suspended
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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, September 25, 2009

British TV programme looking for potential TMAU tester

The new UK trimethylaminuria website, tmau.org.uk , has been contacted yet again about a media opportunity for a volunteer in the UK. The owner writes on this page on the tmau.org.uk website ...

Channel 4 to feature TMAU

Channel 4 to feature TMAU.
WE NEED YOU to volunteer

I have been contacted by a TV producer who wants to feature Trimethylaminuria.

Please give it serious consideration, it would be a fantastic opportunity to highlight our cause.

Here's the email from Vicki Cooper, v.cooper@mavericktv.co.uk This e-mail address is being protected from spambots. You need JavaScript enabled to view it

I'm a producer working on the new series of 'Embarrassing Bodie's for Channel 4.

Whilst I realise the title is of the series is attention grabbing, the show offers fantastic health advice and myth dispelling about things people would rather not discuss. If you haven't seen 'Embarrassing Bodies', you can watch some recent episodes on 4OD - http://www.channel4.com/programmes/embarrassing-bodies/4od and take a look at the BAFTA award winning website here http://www.channel4embarrassingillnesses.com/

We are really keen to find a TMAU case study for the new series. I am aware of the social stigma associated with TMAU - the aim of featuring a case study on Embarrassing Bodies would be to expose the myths around it and also de-stimgmatise the condition. From what I have read, there could be a lot of other people hiding themselves away unaware that they have a medical condition and many Doctors don't even recognise it.

We are ideally looking for someone who is undiagnosed or has only just discovered the condition and isn't on a treatment plan yet, so we can refer them to a specialist and follow their journey/improvement.

Best wishes, Vicki

Vicki is very approachable and will talk through any concerns or questions you have without any commitment to doing anything.

Dr Lachmann is 'on board' as well.

Please email Vicki at v.cooper@mavericktv.co.uk This e-mail address is being protected from spambots. You need JavaScript enabled to view it , please mention this website (tmau.org.uk) when contacting Vicki.

You can also use the contact form on the website if you prefer and I will forward your messages on.


Embarrassing bodies has been running for a few series on channel 4 (one of the main free to air channels in the UK). Usually the cases take on the structure of someone going to the shows 'Dr' with an undiagnosed problem, who then refers them to an expert, and then the story ends happily (in this case, presumably with a diagnosis of TMAU and advice on the TMAU protocol). Normally each case gets around 5 minutes airtime (?).

Good luck to any brave volunteers. Your place in the group hall of fame is guaranteed !

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