The new UK trimethylaminuria website, tmau.org.uk , has been contacted yet again about a media opportunity for a volunteer in the UK. The owner writes on this page on the tmau.org.uk website ...
Embarrassing bodies has been running for a few series on channel 4 (one of the main free to air channels in the UK). Usually the cases take on the structure of someone going to the shows 'Dr' with an undiagnosed problem, who then refers them to an expert, and then the story ends happily (in this case, presumably with a diagnosis of TMAU and advice on the TMAU protocol). Normally each case gets around 5 minutes airtime (?). Good luck to any brave volunteers. Your place in the group hall of fame is guaranteed !Channel 4 to feature TMAU
Channel 4 to feature TMAU. WE NEED YOU to volunteer
I have been contacted by a TV producer who wants to feature Trimethylaminuria.
Please give it serious consideration, it would be a fantastic opportunity to highlight our cause.
Here's the email from Vicki Cooper, v.cooper@mavericktv.co.uk
I'm a producer working on the new series of 'Embarrassing Bodie's for Channel 4. Whilst I realise the title is of the series is attention grabbing, the show offers fantastic health advice and myth dispelling about things people would rather not discuss. If you haven't seen 'Embarrassing Bodies', you can watch some recent episodes on 4OD - http://www.channel4.com/programmes/embarrassing-bodies/4od and take a look at the BAFTA award winning website here http://www.channel4embarrassingillnesses.com/ We are really keen to find a TMAU case study for the new series. I am aware of the social stigma associated with TMAU - the aim of featuring a case study on Embarrassing Bodies would be to expose the myths around it and also de-stimgmatise the condition. From what I have read, there could be a lot of other people hiding themselves away unaware that they have a medical condition and many Doctors don't even recognise it. We are ideally looking for someone who is undiagnosed or has only just discovered the condition and isn't on a treatment plan yet, so we can refer them to a specialist and follow their journey/improvement. Best wishes, Vicki
Vicki is very approachable and will talk through any concerns or questions you have without any commitment to doing anything.
Dr Lachmann is 'on board' as well.
Please email Vicki at v.cooper@mavericktv.co.uk , please mention this website (tmau.org.uk) when contacting Vicki.
You can also use the contact form on the website if you prefer and I will forward your messages on.
0 comments: