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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Thursday, October 29, 2009

8th November Special Conference Call : Featuring Cheryl Marshall : Founder of the NORD TMAU Fund and recently featured on Mystery Diagnosis TMAU story

Please join us on a Special Conference Call featuring our very own, Cheryl Marshall to be held on Sunday, November 8, 2009 at 2:00pm. As we all know, Cheryl’s story about Trimethylaminuria was recently told in a Mystery Diagnosis episode this past spring (2009). Cheryl’s presentation and Q&A session will begin at 3:00pm. She will be sharing her experiences in making this documentary, living with and managing her TMAU, and she will tell us all about the NORD TMAU Fund as well. Please bring all your questions that you may want to raise with Cheryl. Cheryl was responsible for the founding of the NORD TMAU Fund, and recently with a few other sufferers she set up a special fundraising website for the NORD TMAU Fund; rrr-tmau.com , which she will be talking about. Cheryl, thank you for being there for us, for coming forward and telling the world about TMAU, and for being the brave and caring person that you are!

Special Conference Call Sunday, 8 NOV 09 2:00pm and Cheryl's presentation begins at 3:00pm For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629# Non USA : prefix above with 001 but check to see if it is free with your supplier.
Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)
WE’LL SEE YOU THERE!

related links: phoning the TMAU conference call cheaply from overseas

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