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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, October 29, 2009

8th November Special Conference Call : Featuring Cheryl Marshall : Founder of the NORD TMAU Fund and recently featured on Mystery Diagnosis TMAU story

Please join us on a Special Conference Call featuring our very own, Cheryl Marshall to be held on Sunday, November 8, 2009 at 2:00pm. As we all know, Cheryl’s story about Trimethylaminuria was recently told in a Mystery Diagnosis episode this past spring (2009). Cheryl’s presentation and Q&A session will begin at 3:00pm. She will be sharing her experiences in making this documentary, living with and managing her TMAU, and she will tell us all about the NORD TMAU Fund as well. Please bring all your questions that you may want to raise with Cheryl. Cheryl was responsible for the founding of the NORD TMAU Fund, and recently with a few other sufferers she set up a special fundraising website for the NORD TMAU Fund; , which she will be talking about. Cheryl, thank you for being there for us, for coming forward and telling the world about TMAU, and for being the brave and caring person that you are!

Special Conference Call Sunday, 8 NOV 09 2:00pm and Cheryl's presentation begins at 3:00pm For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629# Non USA : prefix above with 001 but check to see if it is free with your supplier.
Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

related links: phoning the TMAU conference call cheaply from overseas


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