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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, December 12, 2009

Conference Call : Main topic of discussion - Nashville Meetup


Please join us in tomorrow’s Conference Call so that we can discuss our first annual Body Odor and Halitosis 2010 Meetup. We need to discuss what catering services we would like to look for to best serve our needs as well as the topics of conversations we would like to bring up so as to research them in advance.

As I have diligently been work toward getting the best deal with hotel accommodations in Nashville, and I believe that we have come to a very good agreement with the Embassy Suites Nashville-Airport hotel. See that previous video post I’ve done on these accommodations. Since there is a basketball game that has filled up all the lower rates for the weekend of March 13th & 14th, we’ve had to change our meetup date to the weekend of March 20th and 21st. Here’s a brief outline description of what has been agreed upon. The Sales Manager of this Hilton Hotel is currently in the process of putting this information in their Reservations System so that we can call to book our suite.

1. A corporate rate that can be booked under MeBO Research of $99.00/night for a 2 room suite (a parlor, room, wet bar, bathroom, and much more) that could accommodate up to 4 people in a king size bed and sofa bed, and up to 6 people in 2 double beds and sofa bed).
2. Daily full breakfast per person, and daily 2-hour Manager’s Reception in the evenings with alcoholic and non-alcoholic beverages and snacks.
3. Can guarantee reservations (once booking process is finalized) with credit card, but will not be charged until check-out, and can cancel reservations up to 6:00p.m., on the day of arrival without a cancellation fee.
4. One of the suites can be the Governor’s Suite for us to meet in,

which has a conference table and living room area for only $55 more a day, so we can collect $10/day per person to cover this expense as well as the lunch catering expenses. (subject to change – to be discussed on the conference call) If the group becomes too large, we might have to opt for a conference room for $150/day. We’ll see.
5. See all the amenities noted in the Embassy Suites Nashville-Airport website.

Additional information will be posted in the blog and forums as soon as the reservation process is set up – probably by Monday or Tuesday the latest.

We have much to discuss, so I hope to talk to everyone on tomorrow’s conference call.



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