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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :
https://meboresearch.co.uk/index.php/living-with-tmau-lwtmau-study/

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Saturday, December 12, 2009

Conference Call : Main topic of discussion - Nashville Meetup


JOURNEY TO THE NASHVILLE MEETUP 20th & 21st MARCH 2010

Please join us in tomorrow’s Conference Call so that we can discuss our first annual Body Odor and Halitosis 2010 Meetup. We need to discuss what catering services we would like to look for to best serve our needs as well as the topics of conversations we would like to bring up so as to research them in advance.

As I have diligently been work toward getting the best deal with hotel accommodations in Nashville, and I believe that we have come to a very good agreement with the Embassy Suites Nashville-Airport hotel. See that previous video post I’ve done on these accommodations. Since there is a basketball game that has filled up all the lower rates for the weekend of March 13th & 14th, we’ve had to change our meetup date to the weekend of March 20th and 21st. Here’s a brief outline description of what has been agreed upon. The Sales Manager of this Hilton Hotel is currently in the process of putting this information in their Reservations System so that we can call to book our suite.

1. A corporate rate that can be booked under MeBO Research of $99.00/night for a 2 room suite (a parlor, room, wet bar, bathroom, and much more) that could accommodate up to 4 people in a king size bed and sofa bed, and up to 6 people in 2 double beds and sofa bed).
2. Daily full breakfast per person, and daily 2-hour Manager’s Reception in the evenings with alcoholic and non-alcoholic beverages and snacks.
3. Can guarantee reservations (once booking process is finalized) with credit card, but will not be charged until check-out, and can cancel reservations up to 6:00p.m., on the day of arrival without a cancellation fee.
4. One of the suites can be the Governor’s Suite for us to meet in,


which has a conference table and living room area for only $55 more a day, so we can collect $10/day per person to cover this expense as well as the lunch catering expenses. (subject to change – to be discussed on the conference call) If the group becomes too large, we might have to opt for a conference room for $150/day. We’ll see.
5. See all the amenities noted in the Embassy Suites Nashville-Airport website.

Additional information will be posted in the blog and forums as soon as the reservation process is set up – probably by Monday or Tuesday the latest.

We have much to discuss, so I hope to talk to everyone on tomorrow’s conference call.

María

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