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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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to join : go to
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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, December 14, 2009

People overseas can do the MeBO-Biolab gut dysbiosis trial if the samples are returned within 48 hours of collection

The 4 tests :
Indicans urine test
D-lactate blood test
Gut fermentation test
Gut permeability test
Total : £146
£5 shipping overseas
The MeBO-Biolab gut dysbiosis study has been enthusiastically received by the volunteers, despite having to pay their own costs, showing the appetite in the community for action in the form of test results, looking for clues into the various systemic body odor and halitosis conditions (especially 'fecal body odor', which is probably the main form of body odor). A request was made from overseas asking to participate in the study, and when Biolab was asked, we were informed that overseas volunteers can apply if they wish, for an extra £5 surcharge in shipping the test kit to them, under the provision that the samples can be returned within 48 hours of being collected. However, since blood is involved in the basic 4-test panel, there are additional obstacles to overcome.

1. The volunteer would be responsible for shipping the sample to Biolab, and in order to get it back within 48 hours of collection, this could be costly. The obvious reputable options are FedEx, UPS, etc, and there are 3rd parties who sell these same companies’ slots cheaper. In addition, since one of the samples is blood, there may be further precautionary measures required before these companies would handle the parcel. This could be testing the blood to be classified as non-contagious for infections diseases.

2. It might be difficult to get the 4 samples together for shipping logistically. The D-lactate sample is expected to spoil after 48 hours, but the other urine samples should be ok within 5 days. For anyone who cannot fulfill the 48 hour rule, he or she may ship all but the D-lactate test within 5 days of collection.

In the end it is up to each person if it is worthwhile, under the caution that samples may be spoilt. Probably those in Europe should be near enough, and perhaps USA too. You would also need to find a phlebotomist to take the blood sample.

It should also be noted that these tests are only a starting point in the area of testing for answers to the causes of the various body odor conditions, and that the results do not necessarily indicate the cause of the odor problem. Since no-one is researching systemic body odors, this is a first attempt to look for clues into systemic body odor using a 'self-help' strategy.

Anyone wishing to test is welcome to fill out the survey and thus request the test kit, which would then be shipped to them. A £5.00 international shipping fee will be added to the total charges by Biolab. Credit card payment is the most convenient form and is expected to accompany the samples by adding the credit card details with the Biolab’s invoice.


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