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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, December 24, 2009

Nashville 2010 Meet-up : Hotel accommodations contract signed

We have come to a very good agreement with the Embassy Suites Nashville-Airport Hotel to hold our Nashville Meet-up on Saturday and Sunday, 20th & 21st March 2010. The rooms are blocked for us as noted below for $99/night on the 19th - 21st March; in addition, anyone interested in getting the same rate 2 days prior and/or 2 days after (from 17 March thru 23 March) can do so subject to availability, as long as it is booked by February 28, 2010.

Due to the holiday period, the final arrangements to book your hotel stay have been delayed. However, the Sales Manager tells me that since the contract between MeBO and the Embassy Suites Nashville-Airport Hotel agreeing to the terms below has been signed, we should be able to begin booking our individual suites as of Monday afternoon.

Please do not book until the beginning of next week when I have posted the booking process post.

See other posts in this blog about the Nashville 2010 Meetup.

Here is what MeBO Research and the Embassy Suites Nashville-Airport have agreed upon for our meetup.

Fri 19MAR10, Sat 20MAR10, and Sun 21MAR10

King bed Non Smoking Suite 5 Suites per day
Two Double Bed Non Smoking Suite 15 Suites per day
Governors Suites Non Smoking Suite 1 per day

Rates per Suite (Single and Double Rate)
King bed Non Smoking Suite $99/night
Two Double Bed Non Smoking Suite $99
Governors Suites Non Smoking Suite $150


Room rates are quoted net non commissionable and exclusive of local taxes and fees.

Quoted rates will be offered, based on availability, to meetup attendees 2 days before and 2 days after the above dates.

Room rates include : complimentary daily full breakfast per person, and complimentary daily 2-hour Manager’s Reception in the evenings with alcoholic and non-alcoholic beverages and snacks, and complimentary airport shuttle.

Each 2 room suite features a parlor with a sofa bed (double bed), a king or 2 double bed room, wet bar, bathroom, marble vanity and sink in bedroom, 2 TVs (one in bedroom and parlor), and more. Each king size bed suite can accommodate up to 4 people using the double bed size sofa bed, and up to 6 people in 2 double beds and sofa bed.

Meetings will be held in Governor’s Suite.

No one has to pay anything in advance for the rooms, though we may need to raise funds from the attendees to cover lunch catering and the use of the Governor's Suite to meet. This may be approximately $10-$25/day (Saturday and Sunday only)? We have yet to negotiate rates with the caterers, so more information will be forthcoming regarding this.

Each person reserves his/her suite guaranteeing suite/rate with a credit card, though your card will not be billed until you check out after your stay. No penalties apply for cancellations per suite up to until 6:00pm on the day reserved for check-in. And in that case, the credit card used to reserve and guarantee the room will be charged one night's stay. MeBO will not be responsible for this fee.

According to the terms of the contract, twenty one suites will be blocked for the meetup until 28FEB10. Reservations are to be made by individuals no later than Friday, February 28, 2010. After that date, the suites not reserved by the meetup attendees will be released by Embassy Suites for their general sales. Then anyone who wishes to book for the meetup after February 28th will be subject to availability and to current rates.

I will guarantee the Governor's Suite with my credit card. Since members will be welcome to get together in this room between 12:00 noon and 5:00pm, I will be staying in this room as opposed to renting a regular suite for $99.00. Therefore, the remaining $50/day (Saturday and Sunday only) and lunch catering cost can be covered with a predetermined donation (to be calculated after consulting with the caterers) from each member attending. Currently it is planned that two members who are flying in from London to share in this meet-up with us will also share this room with me.

We will meet in the Governor's Suite from 12:00noon through 5:00pm, Saturday and Sunday, since the full complimentary breakfast will be served until 10:00am, and the Manager's Reception is from 5:30pm to 7:30pm at the Hotel Atrium. However, if the group prefers, we can go sight-seeing on Sunday at any time. We can arrange in advance catering for lunch during the meetup.

Some of our international members who could not attend have requested that we set up a audio/video conference while we meet in the Governor's Suite, perhaps for a limited time only especially during interesting discussions, in order that they may also participate. Since some of us may not wish to come out on camera, we can point the webcam in a direction where only those who do wish to be visible (if anyone does) can do so, and others would not. Those of us who do not wish to be seen or heard would stand away from the webcam and further away from the microphone. If anyone objects to this, please let me know, and we will do all possible to accommodate. Photography will be limited to sights and out of respect for others, NO MEMBER MAY BE PHOTOGRAPHED WITHOUT HIS OR HER PERMISSION.

I look forward to seeing everyone at the meeting and sharing special moments with each one. I see that 14 people have taken the poll and said they would be attending, and many have emailed me expressing interest as well. If you have not done so yet and are planning on attending, please indicate it in the poll below. I think it's going to be a very memorable experience for us all!


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