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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, May 22, 2010

Tester 8 results : MeBO-Biolab gut dysbiosis study

Tester 8
Mid 20's
Odor problem:
Systemic body odor. strong sudden sulphur odor, no physical feeling of having passed wind, no other physical sensation, just a sudden smell. Often experienced in social situations, around alot of people, situations where I am nervous/anxious/ had a lack of sleep/ situations where adrenalin is involved... For 3.5 years
Gut problems
Bloating, Constipation
Other problems
IBS, Eczema, Peanut Allergy
Trimethylaminurianot tested

Results :
Tester 8
Gut FermentationHigh Ethanol 120 (under 22 is normal. Indicates small intestine yeast overgrowth.)
mebo body odor study gut fermentation tester 8
Gut permeabilityNo result yet

IndicansPositive, indicating alteration of tryptophan by gut bacteria
mebo body odor study indican tester 8
D-lactate15 (Normal under 60)
mebo body odor study d lactate tester 8
Vitamin B2
1.56 (Deficient) : normal is less than 1.2
mebo body odor study vit B2 tester 8

The results of tester 8 in the MeBO-Biolab gut-dysbiosis study have been returned (apart from the gut permeability test result), and once again it shows a fairly high level of ethanol (in relative terms), indicating yeast fermentation in the small intestine. Indicans was also positive, which indicates alteration of tryptophan by gut bacteria, and is a crude and inexpensive test, and can imply a putrefaction action by gut bacteria (A doctor's explanation of the indican urine test). This is the 3rd positive for indicans in our study. Tester 8 is our 3rd tester since vitamin B2 was added to the survey, and once again had a deficiency as the previous 2 had. D-lactate was normal again, with only tester 2 being abnormal (possibly since they were taking probiotics at the time).

Again, we cannot say these results prove anything, and are just a limited snapshot of how testing can possibly show best what is going on in people with systemic body odor or halitosis complaints. However, hopefully they are a foundation to work on, in trying to define systemic body odor/halitosis disorders.

Anyone wishing to do the study can fill out the MeBO-Biolab body odor/halitosis gut dysbiosis survey and the process will begin. Unfortunately those overseas from the UK seemingly cannot do the vitamin B2 or d-lactate test, since the sample will likely be spoilt in transit. Testers need to pay for their own tests.

The results of tester 9 are also back and will be posted soon next week, along with the updated table of all results.


Anonymous said...
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May 23, 2010, 4:43:00 PM
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