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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, May 26, 2010

Tester 9 results : MeBO-Biolab gut dysbiosis study

Tester 9
early 30's
Odor problem:
I have been told I smell of poo. there is no range of smells rather very strong (a few feet away range) or very light. Problem for over 10 years. I believe certain foods trigger my smell. milk, cheese and beef are possible triggers.
Gut problems
took regucol and stomach felt terrible had to stop after a few days
Other problems
athletes foot
Trimethylaminurianot tested

Results :
Tester 9
Gut FermentationNo ethanol detected. Apart from acetate, the short chain fatty acids were low, which are produced by normal gut bacteria
body odor gut fermentation
Gut permeabilityIncreased permeability in 2 areas : at 242 and between 300-506
body odor leaky gut
body odor indican & lactate
D-lactate16 (normal is under 60)

Vitamin B2
1.35 : Deficient (normal is less 1.20)
body odor B2

Tester 9 results are back from Biolab, in the systemic body odor gut dysbiosis study. In this case, the person has been suffering from a fecal odor type syndrome for a number of years. In this case, no ethanol was detected in the gut fermentation test, suggesting no yeast overgrowth in the small intestine. However many of the short chain fatty acids were low, which are produced by normal gut bacteria. The lab tester usually suggests with that profile that this could be due to poor fiber intake, diarrhea or a hypoglycemia tendency. Whatever the reason, it seems to imply a deficiency in SCFA's produced by normal gut bacteria. Once again the Vitamin B2 is deficient, making it 3 out of 3 of our testers. Gut permeability was raised over certain levels of molecular size, implying 'leaky gut'. So once again the gut-dysbiosis markers chosen showed up abnormal results although nothing can be concluded at this point.

Anyone wishing to take part in this systemic body odor or halitosis study can fill out the MeBO-Biolab body odor/halitosis gut dysbiosis survey and the process will begin. It would be especially interesting to see how those who were positive for TMAU would get on with these tests. Unfortunately, those overseas from the UK seemingly cannot do the vitamin B2 test, since the sample will likely be spoiled in transit. Testers need to pay for their own tests. The tests are seen only as a starting point for exploratory testing into possible causes of systemic body odor and halitosis.


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