and wish to be part of MEBO Research's 'Raise Awareness Campaign'
particularly in the medical community
please contact maria.delatorre@meboresearch.org
In the first part of the article, we plan to write about the need for recognition of, and research into systemic body odors, and to make the reader aware of TMAU. Since many persons diagnosed with TMAU also claim to have fecal body odor in addition to or instead of fish odor, we believe it is important to also raise awareness of the need of further research to understand what else could be at play in this and other non-TMAU body odor conditions.
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AAP adolescent health website |
Additionally, if you prefer (though not required), you can give a voice to all children and adolescence who may not know how to put what they’re going through in words. It could portray (though not necessarily so) the humiliation of ridicule a child encounters, the pain and suffering produced by frequent denial and negation from family members, and the frustration encountered when physicians are not familiar with body odor related conditions not resulting from a serious well-known illness, and the feeling of complete helplessness one feels at such an early age. A pseudonym could be used. The idea is to make pediatricians aware of how difficult and stressful it is to get a diagnosis, and also what odor problems the person can have (depending on what they say). Hopefully the whole article will make the reading pediatricians aware it is not that rare a problem.
If anyone would like to be the testimonial volunteer, we would be very grateful if they contact us at :
The AAP newsletter is subscription only, however we plan to post it on our blog if we get permission from the testimonial volunteer and the AAP. Also, if we get a few testimonies, we may publish some of them on the blog over the months as testimony for anyone to read, if we get the permission of the writer.
We hope this endeavor will be informative to pediatricians of the known resources of diagnostic testing as well as the applicable odor-management protocol available to treat his or her patients who present solely with fecal, fish, or any other type of body odor. We also hope it will promote support for more research.

President and Executive Director
MEBO Research
maria.delatorre@meboresearch.org
www.meboresearch.org
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