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"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
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"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
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Started May 2018 - Ongoing

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, August 3, 2010

Trimethylaminuria phenotype testing in Germany



We have been informed that trimethylaminuria phenotype testing (the urine test) is available in Germany at the following hospital

University Children´s Hospital
Metabolic laboratory
Im Neuenheimer Feld 430
D-69120 Heidelberg
website: http://www.stoffwechsel.uni-hd.de/

The details we have are :

Testing must be done via a Doctor
Current test price is 190 Euros 
Not sure if test kit is sent out. Probably is on request. The urine sample must be HCL acidified.
They test for TMA and TMA-Oxide
They accept samples from European countries

The contact email is : 
juergen_okun@med.uni-heidelberg.de
PD Dr Juergen G. Okun (PhD)
Head of metabolic laboratory and newborn screening
We have added this information to our list of known trimethylaminuria test labs on our website. If you have any tmau lab information, feel free to let us know if you wish. 

posted by blogcontributor2 on 8/03/2010
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