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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, October 20, 2010


As mentioned in the previous three posts on MEBO Research’s International TMAU Testing Program, MEBO has been very proactively pursuing low cost international shipping possibilities of the TMAU test kit from Eliapharma Analytical Services Inc. to other countries, initially in the Western Hemisphere, while Eliapharma is obtaining an import/export permit from the Canadian authorities.


that even before all the arrangements have been finalized, we already have 14 persons on the waitlist to participate in this program

from Canada, Ecuador, Mexico, Peru, and the United States.

So far, a number of positive developments have been established, such as,

  1. There are no additional fees for internationally transporting dangerous good in quantities of less than one liter, such as hydrochloric acid (HCl), governed under United Nations Class A Code UN 1789. HCl or another similar acid will be shipped in the kit to stabilize the samples,

  2. Anyone interested in putting himself or herself on the waitlist may do so by sending an email to :
    with no obligation to participate.
  3. There are no additional fees for transporting urine specimen to test for chemical compounds, since it is unregulated if declared to be non-contagious : Infectious substance affecting humans, UN2814 Category A (United Nations Classification for Transportation & Shipment of Biological Materials), which would apply to infectious substance limited to viruses and bacteria, and UN 3373 substance including viruses, bacteria, fungi. A disclosure statement would have to be signed by the person whose urine is being analyzed,

  4. There will be no Duty or Taxes incurred for the specimen kit, with and without urine. It has been classified by the World Trade Organization with a Harmonized Code (HC) Number 9018.90.8000, which describes the commodity as an, “Instruments and appliances used in medical, surgical, dental or veterinary sciences, nesi, and parts and accessories thereof MFN Duty Rate: Free.” Nonetheless, MEBO would still like to double check to verify with each country that the kit will be mailed to for additional confirmation.
In other words, it appears that the only shipping cost involved may only be the FedEx negotiated shipping rate, which is still in the works. I will be having another conference call tomorrow with my FedEx accounts executive and an expert in international shipping procedures involving so many countries to obtain more information. I will do all possible to ensure that there will not be any other "hidden fees," though I realize that since there are so many countries involved, we won’t know for certain until we actually begin the process. However, all efforts to obtain information and clarification in advance will be exhausted in this preparatory stage.

Anyone interested in putting herself or himself on the waitlist may do so by sending an email to, with no obligation to participate. PLEASE NOTE WHAT COUNTRY YOU’RE IN ON THE EMAIL. Once all arrangements have been finalized, we will contact you.

María de la Torre
President and Executive Director
MEBO Research

Related Posts:

MEBO and Eliapharma TMAU Testing and future research goals

MEBO and Eliapharma TMAU Testing Update 4



More about TMAU testing through MEBO Research

TMAU Test with Eliapharma through MEBO Research

International TMAU testing in Canada : Special Group Rates


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