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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, November 19, 2010

Washington DC 2011: You can book MEBO’s 2nd Annual Meetup

If you need assistance in transportation to the meet-up from your home, such as looking for anyone interested in carpooling, or in getting good bus, train, or air fares, please send me an email. If anyone would like to volunteer to get bus and train transportation information to Washington DC to share with us, please let me know at

MEBO Research 2nd Annual Meetup
Embassy Suites
Dulles Airport Hotel
8th, 9th, 10 April 2011
I'm happy to announce that MEBO Research has signed the contract agreement with the Dulles Airport Embassy Suites for us to hold our second annual Meetup on Saturday and Sunday, April 9th and 10th. The hotel has guaranteed us 20 suites at a rate of $89/night for Friday and Saturday nights, April 8th and 9th, and 10 suites for Sunday, April 10th (to check out on Monday). Bookings can be done online or over the phone using the MEBO Research Group/Convention Code: MER. This same rate will be extended one day prior, on Thursday, April 7th, subject to availability at booking time, for anyone wishing to stay longer. If you wish to stay even longer than April 7th - 10th, please send me an email at,, and I'll try to arrange it for you (no promises).

Room rates include :
  • Complimentary daily full breakfast per person
  • Complimentary daily 2-hour Manager's Reception, serving alcoholic and non-alcoholic beverages and snacks
  • Complimentary Dulles Airport shuttle
  • Free self-parking.

MEBO's Director of Public Relations, Glenna Gonzalez, was kind enough to find this hotel, and she personally went to see it for us. She was very pleased with the elegant yet cozy environment that would serve as a welcoming backdrop for our meetup. She fell particularly in love with the Board Room, in which we will be meeting on Saturday to discuss very interesting topics.(More information to follow)

Rates per Suite:

King bed Non Smoking Suite $89/night
Two Double Bed Non Smoking Suite $89/night
Board Room for Saturday,
April 11th, RATE: $300 + 22% Service Fee + 5% tax = $381.00

Room rates are quoted net non-commissionable
and exclusive of (9%) local taxes..

Quoted rates will be offered, based on availability, to meetup attendees 1 days before the above dates.

Special Accounts: MEBO Research

Booking Group/Convention Code: MER
I have verified with the Sales Manager that no funds will be held on your credit card when using it to guarantee your booking. Embassy Suites will only use your credit card to confirmed your reservation. You do not have to pay, your credit card will not be charged, until you check-out after your stay, and there is no cancellation fee up to 6:00pm on the first day of your stay.

Booking options:

for the $89/night rates

Availability dates: anytime between 08APR2011 thru 10APR2011
Smoking or Non-Smoking
King or Two Beds (double beds), or No Preference

Special Accounts: Group/Convention Code: MBR

2. PHONE RESERVATIONS: In you wish to reserve for the $89/night rate one days before subject to availability, you need to call Reservations at, 1-703 464-0200 or 1-800-HILTONS (1-800-445-8667) and give them the MEBO Research Group/Convention Code: MER If you would like to stay longer for the same rate, please let me know and I'll see if I can get it for you (no promises).

I do hope you can join us! It will be a very worthwhile and meaningful experience for us all! See you there.

María de la Torre
President and Executive Director

  • Our Own Website to book Washington DC Embassy Suite Reservations


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