Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Labels

March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, November 16, 2010

MEBO and Eliapharma TMAU Testing Update 3


DEVELOPMENT OF THE MEBO TEST PROGRAM

For the past three years, since MEBO Research was just a distant dream beyond the horizon, the main driving force that propelled us to pursue this dream was the thought that somewhere in this world, there are sufferers who don’t have any recourse to have access to a test that would help them understand about their body odor condition or a treatment possibilities to cure it, or at least to control it.

We have been advised that the test kits cannot be mailed out to the 28 people currently on the waitlist to test until this permit has been issued, and the authorities tell us that it should be by December 2nd.
Thanks to the volunteer work of various persons in our English and Spanish speaking community, organizational efforts have brought us very close to being a Charity now, and MEBO is almost at the first stages of body odor testing in places that have never had the hopes of seeing testing come to fruition.

In the long run, the MEBO Test Program aims to develop a more complete repertoire of varied body odor related diagnostic tests as well as research projects, under the guidance, direction, and supervision of Eliapharma and MEBO’s Scientific Advisors, in an effort to better understand the multiple causes of body odor conditions and their respective appropriate treatment. We are very fortunate to have the support and counsel of these, our experts, who have always been available and happy to help.

ABOUT ELIAPHARMA SERVICES INC

Eliapharma Services Inc. is a Contract Research Organization (CRO) located in Laval, Quebec, Canada.

Eliapharma Services Inc. has been in business for four successful years providing Analytical, Bio-analytical, Preclinical and Clinical Services for Biotechs, University Research Centers, Institutes, Pharmaceutical Companies, Generic Companies and Hospitals.

When will testing begin?


In order to be involved in the import and export of human specimens (urine or blood), Eliapharma has applied for an Import/Export Permit from the Canadian Authorities. We have been advised that the test kits cannot be mailed out to the 28 people currently on the waitlist to test until this permit has been issued, and the authorities tell us that it should be by December 2nd.

    The Human Pathogens and Toxins Act (HPTA) establishes legal prohibitions and authorities to govern human pathogens and toxins in Canada. It is designed to protect the health and safety of the public against the risks posed by human pathogens and toxins, while allowing science and research to progress.>


This laboratory has been classified as a Containment Level 2 laboratory by The Office of Laboratory Security, which outlines Operational Practices under the Public Health Agency of Canada. This Classification is valid for one year, and is described as follows:

    Containment Level 2 (CL2) See Organism Lists
    This level applies to the laboratory handling agents requiring containment level 2. The primary exposure hazards associated with organisms requiring CL2 are through the ingestion, inoculation, and mucous membrane route. Agents requiring CL2 facilities are not generally transmitted by the airborne route, but care must be taken to avoid the generation of aerosols (aerosols can settle on benchtops and become an ingestion hazard by contamination of the hands) or splashes. Primary containment devices such as biological safety cabinets and centrifuges with sealed rotors or safety cups are to be used, as well as personal protective equipment (gloves, laboratory coats, protective eyewear). Environmental contamination must also be minimized by the use of hand washing sinks and decontamination facilities (autoclaves).


María de la Torre President and Executive Director
maria.delatorre@meboresearch.org




Related Posts:

MEBO and Eliapharma TMAU Testing and future research goals

MEBO and Eliapharma TMAU Testing Update 4

INTERNATIONAL TMAU TESTING UPDATE 2

INTERNATIONAL TMAU TESTING UPDATE

More about TMAU testing through MEBO Research

TMAU Test with Eliapharma through MEBO Research

International TMAU testing in Canada : Special Group Rates

0 comments:

Post a Comment