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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Thursday, April 14, 2011

DNA testing at

We have mentioned before that genetic testing service is an inexpensive way of getting your genome tested, including for the FMO3 enzyme associated with genetic trimethylaminuria (usually around $199). Sometimes they do special offers where it is even cheaper. Currently they are offering their DNA test for $99 plus shipping, as long as a $9 a month subscription to their online service is also taken for a year (check details). is owned by the wife of one of the Google founders. They use SNP chips for testing.

Many genetic disorders are listed and easy to find out if you are a carrier or have the disorder. However, trimethylaminuria is not one of those listed, and you have to delve into the 'raw data' and interpret it, which to most non-experts would be nigh impossible. Currently there are 56 SNPs for FMO3 listed in the raw data, and we hope to get an expert to help us compile a table so that people can generally interpret their FMO3 DNA result using

We will keep you updated and post a table here when possible.

Those wishing not to know their risk to other diseases such as cancers or Alzheimer disease should not tick the box shown when they first go to their results page.

The sample is taken via a saliva sample sent by mail. Some States do not allow consumer genetic testing (NY State ?). The only way around this is to get the kit sent to an address in another State.


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