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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
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BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Thursday, April 14, 2011

DNA testing at 23andme.com

We have mentioned before that 23andme.com genetic testing service is an inexpensive way of getting your genome tested, including for the FMO3 enzyme associated with genetic trimethylaminuria (usually around $199). Sometimes they do special offers where it is even cheaper. Currently they are offering their DNA test for $99 plus shipping, as long as a $9 a month subscription to their online service is also taken for a year (check details).

23andme.com is owned by the wife of one of the Google founders. They use SNP chips for testing.

Many genetic disorders are listed and easy to find out if you are a carrier or have the disorder. However, trimethylaminuria is not one of those listed, and you have to delve into the 'raw data' and interpret it, which to most non-experts would be nigh impossible. Currently there are 56 SNPs for FMO3 listed in the raw data, and we hope to get an expert to help us compile a table so that people can generally interpret their FMO3 DNA result using 23andme.com.

We will keep you updated and post a table here when possible.

Those wishing not to know their risk to other diseases such as cancers or Alzheimer disease should not tick the box shown when they first go to their results page.

The sample is taken via a saliva sample sent by mail. Some States do not allow consumer genetic testing (NY State ?). The only way around this is to get the kit sent to an address in another State.

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