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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Friday, April 8, 2011

Meetup begins today

MEBO had no intentions of going live on ustream because it has always been MEBO's intentions to protect the privacy of each person attending any meetup, and Ustream would have compromised this ideal. Unfortunately, this post was published after I left Miami on my way to the meetup, possibly due to a misunderstanding of a conversation regarding someone's request, and I was not aware of it until after the conference was over. Please rest assured that no one logged in to ustream during the conference from our conference room, and no part of the conference was aired live at any time. Sorry for the misunderstanding.

I would like to take this opportunity to clarify that in all future meetups sponsored by MEBO Research, there will be no cameras whatsoever during the conference, particularly for such purposes as a webinar, "virtual reality" lifestreaming or live broadcasting, or video conferences. Everyone is invited to join us to attend the conference in person; and as usual, I will post about the material discussed when I return from the meetup. I have always been very sensitive to the need for privacy of each and every person attending these meetups, and my videos or slideshows of the event or any other post never include a picture of a sufferer who attended without their expressed consent/request to do so because they sought to relay a message to the community.

April 17, 2011

The Washington body odor & halitosis meetup begins today at Embassy Suites Dulles Airport. An informal get together is hoped to happen tonight at the manager's reception around 7.30pm. All are welcome.

A conference is expected to begin Saturday at 11 a.m. It's hoped we can network with the internet in some ways.

It's hoped that some livestreaming can be done, though this is not certain. If possible, it would be via Ustream.

Broadcasting Live with Ustream.TV

Other ways of possible interactivity for the conference Saturday :

Via Skype (audio) : Add user meboresearch to your contacts (free)
Via phoneline : USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefix (check prices. Could be costly)


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