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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, April 8, 2011

Meetup begins today

MEBO had no intentions of going live on ustream because it has always been MEBO's intentions to protect the privacy of each person attending any meetup, and Ustream would have compromised this ideal. Unfortunately, this post was published after I left Miami on my way to the meetup, possibly due to a misunderstanding of a conversation regarding someone's request, and I was not aware of it until after the conference was over. Please rest assured that no one logged in to ustream during the conference from our conference room, and no part of the conference was aired live at any time. Sorry for the misunderstanding.

I would like to take this opportunity to clarify that in all future meetups sponsored by MEBO Research, there will be no cameras whatsoever during the conference, particularly for such purposes as a webinar, "virtual reality" lifestreaming or live broadcasting, or video conferences. Everyone is invited to join us to attend the conference in person; and as usual, I will post about the material discussed when I return from the meetup. I have always been very sensitive to the need for privacy of each and every person attending these meetups, and my videos or slideshows of the event or any other post never include a picture of a sufferer who attended without their expressed consent/request to do so because they sought to relay a message to the community.

April 17, 2011

The Washington body odor & halitosis meetup begins today at Embassy Suites Dulles Airport. An informal get together is hoped to happen tonight at the manager's reception around 7.30pm. All are welcome.

A conference is expected to begin Saturday at 11 a.m. It's hoped we can network with the internet in some ways.

It's hoped that some livestreaming can be done, though this is not certain. If possible, it would be via Ustream.

Broadcasting Live with Ustream.TV

Other ways of possible interactivity for the conference Saturday :

Via Skype (audio) : Add user meboresearch to your contacts (free)
Via phoneline : USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefix (check prices. Could be costly)


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