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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, May 16, 2011

MEBO Research's commitment to transparency

It's that time of year again, and MEBO Research must submit its Annual Returns in England, where it is registered as a Not For Profit Limited by Guarantee Company and in the United States as a 501(c)(3) Public Charity.

As noted in its website, MeBO has committed to practice,

Transparency : All moneys received, fund balances, planned and actual spending activities will be disclosed on this website and/or English and Spanish blogs.

In fulfillment of this declaration, MeBO will periodically share information about it's financial dealings with varying types of reports. Even though MeBO is not obligated to do so, as the Founder of these two companies that were established specifically and exclusively to represent the needs of our international community of sufferers, I have chosen to make the financial dealings transparent from the onset.

When I established these two companies with the aim of making them Charities, I envisioned them to be built upon a "Self-Directed Team" concept. This way, no one person is indispensable and all are replaceable, beginning with me. Even though the Self-Directed Team approach is "more risky," than a company sole run from "top to bottom," it is my preferred method because if anything should happen to me, my successor would easily be able to pick up where I left off and continue with the smooth operations of this organized international effort.

MEBO Research is operated, financially and otherwise, by sufferers and for sufferers who volunteer their time and treasure to achieve the goals described in MeBO's website. Each person who considers himself or herself part of this international community would hopefully then be encouraged to be creative with new ideas to meet MeBO's Mission Goals, and to proactively brainstorm and pursue ways to achieve them, or to provide positive ideas to modify or replace these goals with better ones.

Since the annual returns report for the English company is "short and sweet" this year and it seems to be a good snapshot of the year's financial activity, I have determined that it is a good report to make public. All personal information of donators has been replaced with a number code for confidentiality purposes. Click on this link to see this document. The international community is most grateful to all the donators for their very generous contributions towards making this dream come to fruition, one step at a time.

I am currently still working on the US annual returns, and will try to find a "snapshot" financial report to share with the community in the near future.


María de la Torre
President and Chief Executive Officer

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)


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